barefut

My Four Year Old May Have Bacterial Endocarditis

20 posts in this topic

Barefut,

My heart goes out to you and your family. Please let us know as soon as you hear anything. Sending healing thoughts your way....

 

Hugs,

Lisa


Lisa Bulman

(Retired) ISN/SCTC List Coordinator

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Fundraiser

International Scleroderma Network (ISN)

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Hi Barefut,

 

I am so sorry to hear about your son. I am sure you are very worried and anxious. When do you expect to know something? Please let us know as soon as you hear and have time to post. You are in my thoughts.

 

Warm wishes,

Heidi

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Barefut,

You and your son are definitely in my thoughts, lots and lots of positive thoughts.

Big, big hugs to you both,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Barefut,

I am so sorry about your son. Hug on that little angel. My thoughts are with you.

Nan

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Bareful - oh my I am so sorry. As a mother this must be so difficult for you. :( As you obtain any new information, please share with us if you can.

 

Warm thoughts,

 

Gi Gi


Your Friend,

 

Gi Gi

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Barefut both of you are in my thoughts, hope all turns out well.

Birdmans Wife


Hugs for All,

 

Julie (Bird Lady)

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I'm sorry to hear about your little one. I'm thinking of you both and sending positive thoughts your way.

 

 

 

Mary in Texas

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Barefut,

 

So sorry to hear about your son. I am totally stressed out about my 4yr old boy who has been diagnosed with Morphea, which is nowhere near what your son is going through. It's hard being the parent of a sick child - you would move mountains to make them better....

 

My thoughts are with you - I hope you will let us all know how his labs go..

 

Stay strong!

 

Carolynv

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Hi Everyone,

 

Thanks for all of your comforting replies.

 

My son had an ear infection 2 weeks ago which was treated with a short course of antibiotics. Weird thing was that he had no fever at the onset of the ear infection but fever set in on the 4th day of treatment and has continued even after his ear was cleared up.

 

I had him in to have his ear checked after the fever continued and they said ear looked good but if fever continued, bring him back. It did, so I did and at that 3rd visit the ARNP heard a heart murmur.

 

He has never had a murmur before, and because of the lingering fever with no other cold or flu symptoms, he wanted to start him immediately on a longer, stronger course of anitbiotics, get a urine sample, strep culture, bloodwork and an echocardiogram.

 

All he told me was that he may have had an untreated strep infection enter his heart. This normally jovial man had a quiet, serious demeanor and was adamant that my son get on those antibiotics and get the blood drawn that night, before the lab and pharmacy closed in that next hour.

 

Needless to say, I left the office with my head spinning! With no other information I of course turned on my computer hoping to ease my mind (yea, right ;) )

 

After our visit to ARNP today, he told me the strep culture was negative and the only thing I remember him saying about the blood work was that the test that will tell us if he ever had an untreated strep infection (don't remember the name of it of course) won't be back from out of state until most likely Wed.

 

I asked him, "So, what are we worried about here?" and he said rheumatic fever, which results when a strep infection goes un treated or under treated. And one of the many complications of rheumatic fever can be heart valve problems.

 

Well, my son had a cold with a fever in Feb but has NEVER compalined of a sore throat let alone strep throat! I think if my son ever had strep throat, it SURELY would not go unnoticed! Not unless there is such a thing as "mild strep". Is there?

 

I left a message for my son's regular doctor to call me after 2p so I would be sure not to miss his call (tons of questions!). He called at 1pm and said he had to call early because he had to be out of the office after lunch (golfing? :lol: ) I missed him by 10 minutes. He did leave a comforting message though, saying he didn't think he had rheumatic fever and that his murmur is most likely benign.

 

That just leaves the mystery of the lingering fever. He's had NO symptoms of cold or flu, and with his ear infection SUPPOSEDLY gone, who knows what's up with that. His last temprature was 99.1 lastnight , so I think these new antibiotics are doing their job.

 

I'm thinking now that it's been his ear all along and this murmur probably isn't "new" but that this ARNP just has bionic hearing.

 

At least I can relax a little this weekend thanks to the doctor's message. I just wish my son could have seen his regular doctor in the first place!

 

Thank you all again for your comforting replies, and they all DO comfort me! And thanks for reading my long rambling post here.

 

Love you all!

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Barefut,

 

Thanks so much for giving us all an update.....we have been worried for you! It sounds like mostly good news----I am so glad! I do hope these antibiotics knock the fever out and everything else looks great in his blood work. Please do keep us all posted and have a restful, relaxing weekend.

 

Warm wishes,

Heidi

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My son never runs fever with strep. He usually doesn't even have a sore throat. He gets a horrible headache and stomach ache. I guess strep is like scleroderma, it can affect people in different ways. It sounds like your son is moving in the right direction. Take care!

Nan

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