ssakar

Had My First Gi Appt.

5 posts in this topic

I finally got in to see a GI Specialist. Thank goodness my appt. was when it was because I had several bad nights of vomiting and was losing more weight.....now down to 100 lbs.

 

Anyway - he switched me from Nexium to Carafate......Can anyone tell me how Carafate has worked for them?

 

And has anyone heard of being on antibiotics daily?.......possibly forever?

He tried to explain something about me possibly having an infection that just sits in my stomach due to my slow absorption rate.....or something like that. He put me on Xifaxan antibiotics for now until we get some tests ran to see what is going on.

 

He ordered 2 tests to be ran on me next week.

A CT Scan of the abdomen & pelvis (with and without oral & IV Contrast)

and

A SBS (Small Bowel Follow Through Series).

 

Has anyone had these done? If so - what type of result do you get from it?

 

This is all very new to me. I appreciate any information you might have.

 

Thanks,

Sakar

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Sakar,

I have been on Carafate before and it did well. I was in to see my GI in February and he told me about being on antiibiotic forever , but chose not to do with me because of my watermelon stomach. I have had a CT of pelvis, but I haven't had the other tests. Good Luck!

Nan

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Hi Sakar,

 

I am so glad to hear that you finally got in to see a GI specialist and he is going to run some tests. It is not unusual to treat some of the GI symptoms you have been experiencing with antibiotics. As your GI explained, when our systems move material through slowly, bacteria can develop in the intestines (called bacterial overgrowth) and cause all kinds of problems and the treatment of choice for bacterial overgrowth is antibiotics. Here is a link to some information about bowel dysfunction in scleroderma and malabsorption from the Sclero A to Z website. I think you will find some articles there that talk about using antibiotics to help with bacterial overgrowth.

 

Please do let us know how those tests come out!

 

Warm wishes,

Heidi

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Sakar,

I'm go glad you were finally able to get in to see a GI specialist. I hope the new meds work wonders to your system! At 100 lbs, you need to gain, not lose it - of course that's assuming you are over 5 ft. I've had the abdomen CT scan - piece of cake. It just looks inside the organ in the abdomen very much like the CT for the lungs, looks inside the lungs. I'm not familiar with the small-bowel follow-through, but here's what I found out. It examines the 20 feet of the small intestine by having you drink that lovely barium liquid, then x-rays are taken at time intervals to see how fast the barium passes through the intestines. I'll send you a link. Neither test is invasive, just time consuming.

 

Hope you're feeling better soon.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Ssakar, I had this barium test done. It didn't take more than a half hour. You drink a glass of this white barium and then when you finally get it down they bring you another glass to drink. They take an Xray. Then you go back and sit down and wait for that xray series to be read. Then they are so sweet. They bring you another glass of the barium to drink. Then they take another Xray or two. Then you are done. I had a total of three glass's that I had to drink. I did it. And, survived. You will too. This test will tell the doctors how long it takes to get from the stomach to the small bowel then from the small bowel into the large bowel. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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