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Buttons

Shingles

12 posts in this topic

Well I have managed to get Shingles again! Started to feel a little unwell about 3 weeks ago (mainly tired) but while away on holiday I began with quite severe pain around my back and side (just below bra area) and then the rash came out earlier this week and it has been extremely itchy and tender! Saw the general practitioner and  been given some anti viral medication along with antihistamines for the itching. It does feel slightly better today after 4 days worth of tablets and lots of Eurax cream as well along with painkillers. I just hope it continues to ease because I've been spending a lot of time in bed because its so painful and its the only place I can get more comfy!

 

Buttons

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Oh Buttons, I really feel for you.  I'm sorry you have shingles, on top of everything else, no less. And the biggest problem is it can drag on and on, especially if treatment isn't started immediately.

 

I sure do hope that it clears up soon for you!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Oh dear, Buttons; I am sorry to hear that you've joined the shingles club! I had it about three years ago and it was very painful and lingered on for quite a while. My doctor gave me some anti viral medication which did help a bit. I have an idea that you've had shingles before? If so, that's really rotten for you (to get it once is bad enough!! :( )

 

I do hope that the pain eases and that you feel better very soon.

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Buttons,

 

I am so sorry.  I just had to deal with that a couple of months ago, shingles is no easy battle. After you got them the first time did you have the shot? I am supposed to go and have that soon and I was just wondering, cause if you did and they still came back then I would definitely think again about the shot seeing its over 200 dollars and insurance will not pay for it because I am so young.

 

Feel better soon

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I didn't have the shot the first time because that was about 25 years ago and it didn't exist then. 

 

Still getting lots of pain and itching and our weather at the moment doesn't seem to help it and normally I just love the warm weather!

 

Buttons

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Hi Buttons,

Just want to let you know I am sorry you have the shingles and hope you feel better soon. I've only heard stories about how awful they are and hope I never experience them. I cannot get the vaccine because it is a live one and my immune system is weakened from the anti-rejection drugs.

 

Thinking of you,

miocean


ISN Artist

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Hi Everyone,

 

This conversation has me intrigued.  Gareth's Dad had the shinges vaccine when he turned 60 years old because his Dad had a severe case of them.  I am not 60 years old yet and don't *qualify* for the vaccine.  As soon as I turn 60, I will get it to protect myself & Gareth but I thought Gareth could/should get the vaccine, too, due to his immune issues.  Miocean leads me to believe that may not be the case.

 

Just curious......any feedback would be appreciated.

 

Thanks, Everyone.

Margaret

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Hi Margaret,

 

I'm in the UK and although I get the 'dead' flu vaccine every year now since I've had Scleroderma, the shingles vaccine is only available on our National Health System to over 70 year olds as from September 2013. 

 

Like Miocean, I understood that because it's a live vaccine, I wouldn't be able to receive it as I'm on immune suppressants; however, I've found a link to an article from WebMD about the shingles vaccine for people with autoimmune diseases which I hope you'll find interesting. 

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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It says in the article that this study must be confirmed for people with autoimmune issues. That probably means years more of trials and study, but it is hope for the future.

 

miocean


ISN Artist

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Hi Margaret,

 

You could ask Gareth's doctor about this and let us know what they say. Although anyone who has had chicken pox can get shingles later in life, only one out of four people ever get it, and the risk for it really raises after age 50.

 

I got the vaccine as soon as I was eligible. Gene has had shingles, and then he got the vaccine later on, before his lung transplant. Most people who know someone who has had shingles are quite eager to get the vaccine!

 

:emoticons-group-hug:
 


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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From the comments made and the article Joelf posted it certainly is interesting but from my own personal viewpoint I just hope I never get them again!

 

The rash is improving but I'm still getting quite a bit of pain anyway my GPs surgery has rung to say he wants to see me so he's probably just checking up on me because of taking methotrexate (MTX).

 

Buttons

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Hi Buttons,

 

Yes, shingles can be more severe in people who are taking methotrexate (see DermNet NZ), so it is good they are keeping close tabs on you. 

 

Unfortunately, methotrexate predisposes people to many infections, including shingles.  It's a constant, tough balancing act with autoimmune diseases, their treatments, and the side effects and complications of treatments.

 

I'm glad the rash is improving but I'm sorry you are still in pain. I hope it relents a bit for you, very soon!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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