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Amanda Thorpe

Smaller mouth...inside not out?

7 posts in this topic

Hi Amanda,

 

That's an interesting question. I don't know the answer. My mouth seemed to have gotten smaller all the way around, inside and out, causing all sorts of dental problems, and tooth loss was the first part of it that I noticed; then again, I didn't even know about microstomia (or scleroderma) when it onset so I wouldn't have really paid attention early on, if that makes any sense? It sounds like you really need a mouth guard at night. It might be that you've bitten your tongue so much lately that it has swollen up.

 

Ask your dentist if you can keep the impressions they use to make your new mouth guard (mine gives them to me; otherwise I think they throw them away).  If things get worse, you can compare it to other impressions later on, as well as your dental x-rays.  Also measure your mouth opening now; that is something you can easily do yourself and keep track of. Remember to do daily mouth exercises.  An easy one is to just say the alphabet, in the most exaggerated fashion. This will help you preserve as much range of motion as possible.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Thank Shelley. I have recently changed dentists, my previous one took moulds, my new one has taken x-rays though. I'll keep an eye on it for sure and may well need a mouth guard.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Amanda,

 

Lately, I really need a mouth guard for daytime use.  You know, the kind that will prevent me from putting my foot in it!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Interesting. My upper lip is definitely thinner than it used to be, I find it hard to eat things like burgers and even bananas that require you to open wide for a bite, and I can't whistle or make "fishy" faces anymore :(

 

But I'm not finding myself biting my tongue or cheek any more than usual.

 

Although, when all this first came about, I did notice a tightness in the skin behind my molars (the part that connects the upper and lower parts of the jaw, if you can picture it).  Now the outside seems to be tighter than the inside.  But maybe I've just lucked out in not biting things.  But I also find I tend to clench my mouth shut a lot now, so that could also be what's preventing me from biting my cheeks or tongue.

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Hmmm can't say I've heard of this. I did have to go to the dentist just last week however to get a mouth guard made because they think I'm grinding my teeth. Sometimes my gums just "hum". Like they are pulsating… Hopefully it's just that I'm clenching my jaw and teeth. SinceI have sjogrens, I always worry about problem with my teeth due to dry mouth.  :(


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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