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MrsQ

Morphea

3 posts in this topic

Hi, I'm 27 and was diagnosed with morphea about 10 years ago. The dermatologist didn't seem to know much about it at all, he handed me a piece of paper with a very detailed description of what morphea is (or rather describing what it looked like, which is the one thing I didn't need to know as I can see it for myself) and sent me on my way.

 

Never had an appointment since. The first time I went I had 2 patches on my back and now almost my entire back is covered. I'm just wondering should I have had/be having any form of treatment? Follow up appointments? Consultation with a specialist? Etc.

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Hi MrsQ,

 

Welcome to these forums!

 

I'm sorry that you've been suffering with Morphea for many years and that it now seems to have worsened.

 

UVA1 phototherapy is now the recommended first-line treatment for morphea and I've included a link to our medical page on Phototherapy, UVA and PUVA to give you some more information.

 

As the condition seems to be worsening, I would suggest that you make an appointment with a dermatologist who has the specialist knowledge to deal with Scleroderma (here's a list of our recommended Scleroderma experts.)

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello MrsQ

 

Welcome to the forums, I also have morphea (and systemic) but my plaques are on my legs. I have over 20 on my thighs.

 

Morphea, in fact all types of scleroderma, can wax and wane so it's not surprising you have more plaques now.

 

Jo has given you details of the gold standard treatment, UVA1 Phototherapy, apart from that it's topical applications.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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