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Buttons

Large growth in Bowel

24 posts in this topic

I haven't posted for a while but I went for a routine colonoscopy 4 weeks ago & they discovered a very large ulcerated growth in my bowel! I was very surprised since my last one had been completely clear. Since then I've had blood tests and CT scan of my stomach & chest and have seen the consultant who is now going to operate next Friday, he will remove all of the right side of my bowel plus a little of the transverse colon and also Lymph nodes (growth is very close to my Liver) which will be sent for further testing and depending on the outcome of those results may mean I have to have further treatment of chemotherapy. He is going to join the small intestine to what is left of my bowel. Since this is major surgery it is going to take about 3 months to recover from the operation. I keep trying to remain positive but it is very hard when all the medical people keep indicating it may be of the nasty variety of growths. So it has been hard thinking about anything else for a few weeks but I have lost weight! Although I don't think this is quite the right way to do it!

 

If I don't get chance to get back to everyone I do hope everyone has a very happy holiday.

 

Buttons

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Hi Buttons,

 

I'm truly sorry to hear about the results of your colonoscopy; it must be so worrying for you, as well as the prospect of having to go through a major operation. I do hope that once the growth is removed, the prognosis will not be as bad as you fear and that you'll have a successful and complete recovery.

 

All my thoughts are with you for next Friday and I hope that everything goes as smoothly as it can.

 

:emoticons-group-hug: :emoticon-hug:

 

My very best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Dear Buttons,

We will all be pulling for you as you go through your surgery and recovery. I totally understand how hard it is to stay positive sometimes, but I also know you are one of us who get down but pick themselves up and go on. Please keep us posted on your progress.

 

It really is amazing what they can do today, isn't it? Keep in mind that the doctors have to give you the worse case scenario but it doesn't always end up that way. 

 

You made me laugh when you said you've lost weight  :lol: You're right, not exactly the way to do it but you showed your spirit coming through by maintaining your sense of humor through it all. 

 

Good luck next week...

 

:fairy: Some magic wishes  :fairy:

 

miocean


ISN Artist

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Hi Buttons,

 

Oh my goodness gracious!  I am sorry that you have all that to face, on top of everything else. That sounds just awful.  You know that we'll all be here for you, through thick and thin.  And don't be surprised if you find yourself online more than ever, as some of us have experienced that while recuperating from various ailments and surgeries. It might be inevitable during those times when there is so little else we can do.

 

I will be thinking of you and sending lots of healing thoughts your way. :flowers:

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Buttons

 

I hate the out of the blue stuff more than anything else. Gives you no time to prepare. I am sorry this has happened at all let alone at this time of year when you want to be enjoying not thinking about major surgery.

 

When you feel up to it come back and let us know how you are and how things are going.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thanks for all the kind wishes.

 

Well I had the op on 12th December (a day early) and finally came home on 20th December. It all went well enough but was far more radical than I thought, the actual growth was in the Hepatic Flexure and so the have removed approximately half of the large colon this means that the section which removes most of the fluid is no longer there so I have almost constant very loose stools. They have said that the bowels are likely to adjust slightly and that things should improve but that could be months! So just trying at the moment to eat foods which will cause some bulking to help slow things down a little but it may be that I have to take Immodium to help with these issues. I am slowly improving from the op itself but still can't do a great deal and everything exhausts me quickly so just having a shower is a days work to me! But the best news of all is that the growth was benign  :emoticons-clap:  the only downside is that I will have to have a yearly colonoscopy! I feel I've been very lucky because of the size and nature of it they felt it would have turned nasty sooner rather than later or completely blocked my bowel which would have caused some serious problems. 

 

Wishing everyone well over the festive season

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Hi Buttons,

 

Thanks so much for the update and I'm so pleased that the growth was benign; you must be incredibly relieved!

 

Hopefully, you can take things very easy over the holiday period and I do hope that you'll soon feel much better and improve as each day goes by.

 

Have a wonderful holiday!

 

Best wishes


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Buttons,

 

So pleased and relieved to hear that the ulcer was benign.   I do know how hard it is to recover from these things, I have had more than one abdominal surgery and it is no fun at all.

 

I hope you are getting all the support and help at home that you need.   It is hard to even get yourself dressed or make something to eat at this early stage.   One time I came home on 12 December and on 25th my husband asked me what we were having for our 'special' lunch.   My reply - anything you want to make my dear.

 

You mention trying Immodium to slow the bowel down, and I wonder how useful that is in our situation.   I used it a few times years ago in an attempt to be able to walk to the shops :emoticon-dont-know: but all that happened was that I would start vomiting.    The best remedy I have found is a powdered product which you mix with water or 'juice' which is a stool thickener.   There may be other counter indications against this for you at the moment, but in my case my Gastro suggested it and it works quite well.

 

You also have my comiserations about the annual colonoscopy spectre.  I remind myself that because of them I am still here so just grin and bear it.

 

Very best wishes for your recovery,

Take it easy and don't expect too much of yourself too soon.

Love

Judyt

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Sorry to hear of your latest challenge, and good luck with your recovery. My brother has just had all his bowel removed, as he has ulcerative colitis - i was just wondering if you have something like this?

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Hi Buttons ,

 

It's nice to have such good news before holiday!!!       :emoticons-clap:    Best wishes for a quick healing and a better 2014.

 

Take care, Everyone.

Margaret

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Oh Buttons, that is such good news that the tumor was benign! I hope your recovery goes well and that things ease up with time. 

 

miocean


ISN Artist

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Hello Buttons

 

That's great news! A yearly colonoscopy will also serve to put your mind at rest, you may even develop a taste for fleet or picolax! Maybe not!

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Buttons,

 

I apologize for being late in catching this thread. I am delighted to hear that your operation was a success and that the growth was not malignant.  Still, it leaves you with more chronic issues to deal with and I'm sure it's not an easy recovery.  But, I have to confess to feeling very relieved that it wasn't even worse than that, as I'm sure you feel too, and I am so glad that it got caught in time, before you suffered a complete blockage.

 

Somehow time seems to come to a standstill when we are recovering from things, doesn't it?  Here's wishing you a little bit better -- and speedier -- day today.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Buttons,

 

I just read through your thread and the results of your surgery and am THRILLED for you , at this juncture, of the benign finding!!! :yes:

A major surgery but this far down the road on your recovery, I am thinking of you and sending good vibes your way for the very best! 

:spoon: Spoon Theory; :balloons:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thankfully things have improved quite a bit. I feel I had a real turning point last week when suddenly things seemed to be so much better. My bowels have settled quite a bit (but still have a way to go yet) and I'm eating much better except for some foods like onions. I just keep trying different things & if I have an adverse reaction I leave it & try again in in a few days. I am also walking about & getting out that bit more & have even managed to drive a short distance yesterday.  :emoticons-yes:

I go for my 6 week checkup in the beginning of February but I think things are progressing well on the whole, with just a few little niggles but those should improve as time goes on.

 

Thanks to all for your kind support it has been much appreciated 

 

Buttons

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Well I saw the consultant this week and he has already booked me in for my next colonoscopy! He also said that the growth had been pre cancerous and in his opinion I had been extremely lucky that they caught when they did. He checked the wound and I do not have to go back and see him since its just time to recover, he did say I could start building up more in a couple of weeks time.

 

Inkedup, sorry I hadn't replied to your question but I just simply had a very large growth in the right side of my bowel. But my brother had ulcerative colitis and had to have his bowel removed a good number of years ago, he now has a stoma and copes extremely well with it and he is certainly much better in himself than he was before.

 

Buttons

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Hi Buttons,

 

Thank you for the update.  I'm very relieved that your surgery went so good.  I'm sorry the results were pre-cancerous but very glad that it was caught in time!  And what a relief it must be for you to have things getting back to semi-normal.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Thank you for all the messages of support which have helped to keep me going over the last few months. I do still get some bad days but at least more of them are good now!

 

I'm still trying to sort out the insurance claim from having to cancel our trip to New Zealand, we are still waiting on some more information from the general practitioner even though it was the consultant who filled in the medical form & also sent a very comprehensive letter explaining that it was him who had said we must cancel because I wouldn't be fit to travel. Insurance companies really are not the easiest of people to deal with, this is the first time I've ever claimed on holiday insurance let alone having to cancel such a special holiday!

 

Buttons

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VERY pleased to hear you are stringing together more good days than bad!

 

Aaaaaw Buttons...I'm SO sorry your holiday trip had to be cancelled, but I hope you are able to make up for it later on.

 

Continued better days ahead for you :balloons:


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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