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LouiseH

Need advice please, regarding fluid in the stomach

11 posts in this topic

Hi, just wondering if anyone else suffers with this?

 

I'm just after any advice or help I can get towards a problem I have.

 

My stomach always is full of fluid this happens even if I haven't had anything to eat or drink for hours; this has been noticed by a recent scan I had done. I am on tablets to try to empty my stomach faster but it doesn't seem to get rid of the fluid. I also have the problem with my valve not working properly so when I cough all the fluid comes up and I'm being constantly sick.

 

The other problem I have is my stomach doesn't seem to empty quick enough; it doesn't seem to get rid of the fluid when it empties. Is there anything I could take to help dissolve this fluid in my stomach as it does feel like I am constantly drowning in it and it does make my breathing worse when I have this problem?

 

Does anyone else have/had this problem and is there anything I can take or do that will help dissolve the unwanted fluid?

 

Any help and advice would be great and I would be very grateful, thank you,

 

Louise :)

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Hi Louise,

 

Sorry to hear that you're suffering with such unpleasant symptoms.

 

Please note that I have no medical training (apart from a now out of date first aid certificate) but it does sound rather like the symptoms of Gastroparesis. It must be really horrible for you and must affect your quality of life, so I would suggest that you go back to your rheumatologist and see whether he can offer you further help to deal with the sickness and fluid problems which you're experiencing.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Thanks for the advice :)

 

I now have an appointment with my consultant next Wednesday to discuss this; it seems as though tablets are not fixing the problem, so it will probably need looking into in more depth.

Hopefully I will be able to update you soon,

Louise.

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Hello Louise

 

You don't say whether you are under the care of a scleroderma expert and if you're not I would suggest you get referred to one. Scleroderma is so complex and its symptoms, in your case, gastrointestinal, do not alway respond to traditional treatment something not necessarily known by doctors. I have a dear friend with the worst gastro involvement seen by experts and I can't tell you the pain and damage inflicted upon her by doctors not knowing scleroderma, what it specifically does and how to treat it.  

 

Let us know how you get on and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Just a quick update, I had an appointment today with a specialist who is sending me for a barium swallow test followed by an endoscopy. He seems to think its one of two things but the test results will confirm this and then hopefully I can have the treatment to try to fix the problem.
Fingers crossed.

Louise :)

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Though I've not posted on your thread, until now, I have had you in my thoughts and am sending you the best, where the barium swallow and endoscopy are concerned. :emoticons-group-hug:

 

Your doctor is doing the appropriate testing and I feel confident you will be well cared for!

 

Thank you for the update and please keep us posted on their findings?


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Just a quick update,
The results of my swallow test confirm that food & liquid are storing up at the bottom of my throat and are passing through to my stomach very slowly causing a build up.

I am now due to have an endoscopy asap and they will try to stretch the bottom of the throat.   Hopefully this will help things pass through better.

Didn't think I would say this, but I'm looking forward to it just to get it sorted now, fingers crossed it works.

Louise.

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Hi Louise,

 

Good for you!!   It is no help when folks with a problem get all terrified about procedures aimed at helping.

 

Yes you will be warned of all the possible things which could or might go wrong but at the end of the day you are getting nowhere with your throat the way it is so lets all cross our fingers and toes and trust that you will do well.

 

I have had my Oesophagus stretched and know how much that helped.

 

Best wishes from the upside down side of the world,

Judyt

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Hello Louise

 

Esophageal dilation  is the procedure for an esophageal stricture and both sorta common in scleroderma! The good news is that now the problem has been identified you can have treatment and hopefully that much longed for relief.

 

Please let us know how you get on.

 

Take care. 


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Louise,

 

I'm glad that your doctors have figured out what is wrong.  But you know you have a problem, don't you, when you find yourself looking forward to any medical treatment?  So I hope your dilation goes okay, considering.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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