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mdduk27

Stomach advice

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Hi, thought I'd just give a quick update.

My wife's now home but been back to hospital for a week suffering from pneumonia.

She seems to pick up chest infections quite easily, she's not on any auto immune system treatment yet but she has an appointment soon with her rheumatologist; in the mean time she has been put on 15mg of steroids daily.

We are waiting for an appointment at a transplant centre for her to be assessed for a heart lung transplant because the iloprost will only work for a unknown amount of time.

Hopefully things will settle down soon and we can look forward to spending a nice summer with the kids, thanks for all the posts and I'll continue to update.

Marc

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Hi Marc,

 

Thanks so much for letting us have an update on your wife.

 

I'm sorry to hear that she's had a bout of pneumonia and I do hope that the medication has helped her to feel much better.

 

We do have a medical page on Lung Transplants, which I hope will give you some more information.

 

Please do to let us know how your wife's rheumatology and transplant appointments go and I do hope that you and your family will be able to enjoy some decent weather in the UK this summer.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Marc

 

Thank you for the update and I hope you all have a fab summer (not talking weather) together. Sometimes you just have to roll with it, you are all together and that's the main thing to enjoy.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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