• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Gizelle

Numb Feet?

10 posts in this topic

Hi all. The bottom of my feet keeps going numb. Sometimes I can't feel them at all. I seen a neurologist, he did tests and they were all fine. He don't know what is causing it. Any suggestions? Thanks much, Gizelle

Share this post


Link to post
Share on other sites

Hi Gizelle,

 

Sorry to hear about your numb feet problem. Is there any diabetes in your family? Or are you diabetic? Many people with diabetes have decreased circulation in their extremities and some of loss of sensation. Might be worth checking into.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thanks Jennifer and Sweet, for the replies. I don't have diabeties. I do have raynauds. My doctor didn't seem to know what it was, neither did my Neurologist. Doctors, lately don't seem to know anything. Gizelle

Share this post


Link to post
Share on other sites

Gizelle,

I am sorry... I know it's so frustrating. Until I got my Raynauds under control with a calcium channel blocker, my feet were always numb. Mine was definitely Raynauds because my toes were cold too. I have a friend that has Lupus and Sclero and her feet are numb...but her dr. said it was from the sclero...so don't get worried that you have LUPUS!

YOu just never know, do ya.

xo

Jennifer

Share this post


Link to post
Share on other sites

Hi Gizelle,

I don't have any ideas about what it could be, especially since both feet are affected. My only thought is the raynaud's too, thinking it's a neuro problem... although I'm not Dr Susie ;)

Hope it can be figured out soon...or that the problem subsides and doesn'tgive you any more trouble.

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I am sorry they haven't given you any answers yet - hang in there.

 

Is the numbness constant - or does it come and go? Mine comes and goes.

 

Raynauds is very bothersome with my feet. I wear those disposable heaters within my shoes whenever I leave the house. I think the Calcium Channel blockers have helped recovery time, esp in my hands, but not so much the feet. [although sores are fewer]

 

Does exercise affect the numbness?

 

-RTS

Share this post


Link to post
Share on other sites

Hi Gizelle,

 

As I remember you and I were discussing nerve problems way back. We both had numbness that traveled around. I am wondering if your nerve problem is creeping back in on you. Mine sneaks back in occassionally, like a numb toe or numbness on face. When the heat turns on in the summer, then the feet and legs really become numb. I hope yours calms down soon but maybe you go and get an EMG to get a diagnosis. Susie54

Share this post


Link to post
Share on other sites

Yes I do have Raynauds. I also had EMG studies done and the results were negative. My Neurologist has no idea what it would be. I'm also on calcium channel blocker. Adalat xl 60mg's

Share this post


Link to post
Share on other sites

Hey Gizelle,

 

Thanks for letting us know what the doctor said. Sure sorry to hear you have Raynauds. I think it's one of the symptoms that gives me the worse problem.

 

If you have any further questions, just ask away.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now