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shari42

I'm Just Soooo Tired

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Hi everyone,

 

This fatigue is completely kicking me. Today I was at the nail salon and I fell asleep while the girl was doing my nails. I have to have wraps b/c my nails are thin. I was so embarrassed :o . She startled me, then my reaction (waking up) startled her.

 

Does anyone out there have any remedies for this annoying, gotta close my eyes now or I'll pass out fatigue??

 

Thanks and hugs,

 

Shari

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Shari,

 

Probably not the best advice, but I have gotten to the point that when I need to leave the house to do something the first thing I do is get a latte. It keeps me going through my errands until I get home.

 

Also taking B12 may help, or drinking some green tea.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Shari,

 

I am sorry to hear that you are so extremely fatigued! Have you had your iron checked...is it possible that you also have some anemia going on? For me, my fatigue decreased fairly dramatically (but very gradually) when I started taking Plaquenil. I do hope you can find some relief.

 

Warm wishes,

Heidi

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Hello Shari! I was just mentioning to my therapist how tired I was and she said it could be due to some phenomenon (I forgot the name) which occurs in March-April that has tiredness as one of its symptoms.

 

Yeah, I know it's alternative stuff, but I'm so tired nowadays I'll believe anything.

 

Try to get some rest, as silly as that sounds. Go to bed as early as you can and I agree with Sweet that a latte does help when the energy levels seem to fall during the day.

 

Sending you energy,

 

Claudia

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Oh, Shari... How I totally understand the feeling!

Just yesterday, I planned to spend some time at my pc.

However, I was finishing a book I had been reading and

it took all I could do to keep my eyes open!

I had gone to bed early enough, and had gotten a good 7

hours when I got up at 5:15 a m to go help my husband

with work... at 6 a m. I was so tired/sleepy at 10 a m... (we only

work a split shift 3 days/wk: 6:15 a m- 8:30 a m, 4:15-6:15 PM)

... I didn't even eat before lying down for 3 hours!

This kind of thing seems to run in cycles... with me. I can do just

fine for several days...and then this happens!

I also remember when I was first got sick with Scleroderma...

I found I had to nap every day... If I just listen to my body

(and a person isn't employed and has the latitude to nap if/when

they feel the need), I seem to do better.

That's just me...

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Shari-

 

Like others here - I can so relate to your story. It sure snuck up on ya. I haven't fallen asleep at the salon, but I have planned to meet a friend for lunch and a movie, then 15 minutes into it, I bow out and go home for the nap..

 

Tea and coffee seems to hold me over a bit, but nothing helps like that nap.

 

It is hard, but I've been sure to keep up the exercises the physical therapist gave me. It isn't easy to get to the gym, but I do feel better afterwards, especially my joints/tendons.

 

If you figure anything better out - please let us know.

 

Take care .

RTS

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Hi everyone,

 

Thanks for all your support and suggestions. I do subscribe to the latte club too!!!

I was thinking that some of this fatigue could be related to the 12 tubes of blood I had drawn at the dr's visit on Tuesday. Awaiting the results, will hopefully get them tomorrow.

 

I take Plaquenil too, and that has definitely helped, but when I get a flare up, it's like I haven't slept all night.

 

I'm going to try the Vitamin B idea.

 

Thanks again and lots of hugs,

Shari

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