barefut

First Gastro. Appt.

9 posts in this topic

Well now I get all the fun stuff, barium swallow, endoscopy, colonoscopy, esophageal stretch. Yea, most of it not too bad I'm sure. :huh:

 

I guess my heart got a little jealous of my son's murmur and had to have one too. News to me as my gastro doctor told me offhandedly, assuming I already knew I guess. He just says to his intern, "Yea, probably the scleroderma going to work there" So now I get to worry about that now.

 

Also, aparently I only have to TALK about strep to GET it! My throat hurts like... the "dickens". Going in tomorrow for a culture.

 

Today was my son's first day without antibiotics. He has been feeling good. Tonight as he fell asleep in my lap he felt a little warm. I'm going to go take his temp.

 

Now watch ME give him strep. AAAAAAAAAAGGGGGGGHHHHHHHHHHH!!!!!


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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<<I guess my heart got a little jealous of my son's murmur and had to have one too. News to me as my gastro doctor told me offhandedly, assuming I already knew I guess. He just says to his intern, "Yea, probably the scleroderma going to work there" >>

 

Morning Barefut ,

 

This is interesting because Gareth had his echo 2 weeks ago and the cardiologist found a heart murmur on Gareth that wasn't detected before. He said it wasn't related to Scleroderma. I know they found one in me 5 years ago.....guess it is fairly common. Good luck with the foloowup and keep us posted.

 

Take care, Everyone.

Margaret

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Hi Barefut,

 

I am glad to hear that it seems your son is feeling better...did you ever hear the results of the blood work yet?

 

I am sorry that now you think you might have strep now.....if it is, I hope you can get the results and antibiotics right away and get it cleared up. Please do let us know how that and all of your upcoming tests turn out.

 

Warm wishes,

Heidi

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Hi Barefut,

 

I hope your strep test turns out okay.

 

I just wanted to reassure you a tiny bit by mentioning that heart murmurs are extremely common in children and in the general population. As I understand it, they say that anywhere from 50 to 100% of children will have a murmur at some time in their childhood. Most heart murmurs are considered to be "innocent" in that they are not part of heart disease. Many of them may even go away or just be intermittent.

 

Of course, though, it's not a good idea to incur the type caused by untreated strep. My mother had that (rheumatic fever) but all it ever caused her was a heart murmur that never needed any treatment. I also have a low-grade systolic murmur.

 

An interesting thing about murmurs is that not all doctors can hear them, especially if they are low grade. So be prepared for the next doctor you see to claim that you don't even have one at all!

 

It's a miracle cure, I tell you...if the next doctor doesn't hear it, therefore it doesn't even exist. :blink:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hang in there and good luck with all of your upcoming testing. Did the results of your son's bloodwork get back yet?

Nan

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Oh barefut, my goodness!

 

You have a lot going on, not sure how you are keeping up with everything. I do hope you do NOT get strep, and I will be thinking of you during all of your ever so fun (NOT) testing.

 

Keep us posted.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Thanks Shelley, for some more peace of mind. I can't believe my gastro doctor said that! Pretty callous and insensitive. I have been running into a lot of insensitivity everywhere I go lately - the pharmacy, the hospital billing dept. I think they all need to go to sensitivity training classes! Or else go find another job.

 

If his comment was any indication of how he is going to be for the future of our relationship, then I thnk I'd better save a lot of time and heartache and switch doctors now.

 

 

I got my son in to his regular doctor last week and he was again reassuring. The ASO titer preliminary results were negative but the final results are still ot in. No one has explained to me how that works. Don't know how long I have to wait for final results. We scheduled an echo for him to further ease my mind. His appt is on April 17th.

 

Thank you all again for your concern and good wishes.

 

Love, Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Barefut, I am so happy that you don't have strep throat... thumbs up on that!

I've been wondering how your little guy has been doing... thanks for the update.

As Shelly wrote, murmurs are quite common... I had one for quite awhile and apparently, it's gone now.

 

Take care of yourselves.

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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