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bharathi kannadasa

Needing help.

7 posts in this topic

Hi my friends,

 

I am Bharathi Kannadasan from India. My mom is suffering from Scleroderma; she was diagnosed 9 years back and was given Endoxon therapy four times as a pulse therapy; she was responding well. For a week she developed this Raynaud's phenomenon and was readmitted at Apollo hospitals Chennai (India). She was diagnosed to have lung infiltrates on both the lungs-basal lobes and was given Cyclophosphamide today, but her pain in the fingers is intolerable; it's actually killing her and she didn't sleep for the past four days.

 

This disease runs in our family; my moms mother & elder brother had the same disease. I could not see my mom like this & I need medical help.....are there any other hospitals in any country that are really showing some good outputs? Can I get some advice medically from abroad? Please do suggest some hospitals to me where the patients are of real concern.

 

Thank you, friends.

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Hi Bharathi,

 

Welcome to these forums!

 

I'm so sorry to hear that your mother has been suffering from Scleroderma and it's complications for the last 9 years.

 

I've included a link to our page on Scleroderma specialists which I hope you'll find helpful. We also have a news item My Consult: Second Opinion from Cleveland Clinic which includes a link about the Cleveland Clinic; perhaps you may consider this as you can access it from any part of the world.

 

I do hope that you will be able to obtain medical help and advice for your mother and that she will soon improve and feel much better.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Joelf......thank you very much. I am going through the Cleveland consult; this is of great help to me.

 

Wishing very much for her improvement ....

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Hi Bharathi,

 

I do hope the Cleveland Clinic will be able to help your mother and that she will soon improve and be feeling better.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Bharathi

 

Welcome to the forums, I hope you find all the help and support you and your mother need.

 

The Cleveland Clinic, My Consult, is a relatively new option and it's good to hear positive feedback. Many people live nowhere near a scleroderma expert so this option could be such a helpful resource for them. Amazing how technology and medicine move on, I mean could you imagine such a consult just 20-30 years ago? 

 

Take care and keep us posted.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Please update, how is your mother?


Diffuse Scleroderma Diagnosed March 2009

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Please note MyConsult does not currently handle any autoimmune disease, including any form of scleroderma (localized or systemic).

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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