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If you have CREST and have GI Motility issues what has worked for you?

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I have not passed solid formed BMs for 5 days. I am scared and worried that my constipation will cause a tear in my intestine, or that I will die. I haven't slept for 2 days and I need to wash clothes, do dishes and take a shower so I don't miss my early morning doctor appointment tomorrow, she is my general practitioner and not a CREST specialists.


I heard that fiber can make blockage when having motility issues.


Thanks so much, I hope I sleep tonight.

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Hi Danacetz,


Welcome to Sclero Forums. I'm sorry that you are experiencing some bowel issues. Please keep in mind that I'm not a doctor and have no medical training at all, and of course we can't provide any individual medical advice.  But as I understand it, five days is not all that long.  As I understand it, they only call it "severe constipation" when it lasts more than a week, and for some people it is normal to only go once a week. And of course, scleroderma can upset the intestinal apple cart for some people, and you should only use fiber supplements with the advice of your scleroderma doctor as they can worsen some motility issues.


That said, I do know how uncomfortable it is whenever we have any change from normal in our symptoms.  It is good you are going to see your primary doctor tomorrow.  If for any reason you do feel that it's a medical emergency, of course call or visit your local ER. 


Altogether the intestines are about 25 feet long, so you can see it would take an AWFUL lot to fill it up to the brim!  Therefore you should be on the safe side, and maybe knowing that little medical trivia, you can sleep a little better tonight.


Let us know how things go tomorrow, wil you?



Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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Hi Danacetz,


Welcome to these forums!


I'm sorry to hear that you're suffering with constipation; I know that it can make you feel very uncomfortable and bloated.


I do hope that your primary doctor will be able to give you some help and advice and hopefully set your mind at rest to enable you to get some much needed sleep.


Please do post again and let us know how you get on with your appointment.


Kind regards,

Jo Frowde

ISN Board Member

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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