largeangel

Morphea past Lap Band Surgery

4 posts in this topic

Hello, I have been diagnosed this year with Morphea.  My dermatologist was very concerned that it was Paraneoplastic (meaning related to some type of cancer) since my age is 58 and supposedly it is unusual for someone my age to come up with Morphea unless there is an underlying cause.  I have had all sorts of studies and bloodwork for cancer.  Everything has come up negative so far (THANK GOODNESS!)

 

 I had a lapband placed in February of 2008.  The lapband is covered over with lumpy tissue, it pains me with sharp stabbing pains at times, and very near to the port is where the morphea started under my left breast.  It has spread from that one spot to all across my belly, under both breasts and is working its way up across the tops of both breasts, on my back and down the backs of both legs and on the tops of both thighs and on my arms.  All of this has taken place in one year or less. 

 

I wonder if anyone else has the same type of situation. 

 

I believe my body is rejecting the lapband port and thereby causing constant irritation to my immune system thereby causing my morphea.  Any comments or suggestions would be welcome.  I am in the process of getting the lapband removed hopefully, if my insurance will agree to pay for it.

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Hi Largeangel,

 

Welcome to these forums!

 

I'm sorry to hear that you've recently been diagnosed with Morphea; however, it must been a tremendous relief to find out that your blood tests were negative for cancer.

 

I've included a link from our medical pages which includes one of Amanda's super videos on the subject, to give you some more information and although I'm unable to advise you about your gastric band and Morphea from my own experience, it's quite likely that we will have other members who can give you some first hand advice.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi LargeAngel,

 

Welcome to Sclero Forums.  I'm sorry you have morphea but like Jo, I'm also happy you don't have cancer. Sometimes when we are ill, it is hard to stop and count our blessings but I see you are managing that just dandy. :emoticons-yes:

 

I think you might be interested in our Causes of Scleroderma section on our main site. As you'll see, even stress can affect our immune system -- for good or bad -- and there are many suspected causes of scleroderma.

 

I'm speculating -- without any medical license, mind you, just my own pure imaginative speculating, even without my glasses on! --  that It might not be the lap band, per se, that triggered your morphea, but perhaps even just the surgery itself, as we have often heard people attribute the start of their morphea to an injury of some sort.

 

There are some good treatments for morphea now, including UVA1 phototherapy, so, if you haven't already, please be sure to consult a scleroderma expert and get on a treatment program -- regardless of what you decide to do about the lap band.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello LagreAngel

 

I have morphea, as well as systemic scleroderma, and apart from speculations on why I have it I have nothing! I think that once we have scleroderma, for us, the cause is almost irrelevant. It makes no difference to treatment or severity so makes no difference! Well that's what I think now anyway!

 

Having said all that I know that trauma can precede scleroderma and I think that's what brought mine on. I think I was born with scleroderma but that it stayed dormant until something brought it out.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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