Sign in to follow this  
Followers 0
barefut

Looking for Long Lost Sclero Description

2 posts in this topic

Hello Friends,

Many years ago I posted the best, brief yet comprehensive layman's description of diffuse scleroderma that I have ever read. It was just a few paragraphs long, easy to read and understand and included every symptom we suffer with. It was great for sharing with friends and family and I remember it getting raves and people printing it to share.  I cannot find it now and I need to share with someone.  I could probably write my own but this one was special.  If anyone remembers or has the time to help me search for it I would give you a huge cyber hug!

xoxo

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Barefut,

 

I can't help, except to commiserate with you about its loss.   I am absolutely hopeless at finding anything on the net, I think it might have somethingto do with the way I ask a question.    Even when I look up a phone number the system tells me it can't find one.   Tested it by asking for our own phone number, I know we have one, the phone rings every now and then! but I was told there was no listing for us :emoticon-dont-know: .

 

Hope you find it because it sounds like something others might want to share.   Very early on my brother told me where to find a comprehensive description on the EMedicine site, which I copied and later gave to a hospital Nurse who was interested, thinking I could copy it again.   But OH No! it was gone, superseded by something not nearly as comprehensive.

 

Good luch in your search, hope someone can help you.

 

Judyt

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0