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Keerti Bhargava

Hi, My Mother has been detected of scleroderma. Is the disease fatal?

4 posts in this topic

Hi Keerti,

 

Welcome to these forums!

 

I'm sorry to hear that your mother has been diagnosed with Scleroderma.

 

It's very difficult to answer to your question; the severity of the disease rather depends on which part(s) of the body are affected and the amount of organ involvement. I've included a link to our medical page on Types of Scleroderma which I hope will help to clarify the disease for you.

 

In order that we may be able to advise you further, perhaps you could let us have a little more information regarding your mother's diagnosis.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Keerti

 

Welcome to the forums but I am sorry it's because your mother's ill.

 

As Jo has said everything depends upon the type and severity of the scleroderma. For example, if you have morphea, a localised type of the disease, internal organs are not affected and therefore life expectancy is not affected.

 

Although more information would be helpful we can't say whether your mother's scleroderma is fatal or not. Yes, people die from it, they also live very successfully with it as well.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Keerti,

 

There is no cure for scleroderma, you can only treat the symptoms. I know you must be scared about your mother's diagnosis but take heart in knowing that many people who have scleroderma live many years after diagnosis. Be careful of what you read on the internet because it will often be worse case scenarios. There are many more treatment options today than years ago. 

 

We are here for you to answer your questions and help you and your mother. 

 

miocean


ISN Artist

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