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greypilgrim256

Help for Raynaud's.

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It is important to remember that Raynaud's with scleroderma can be a dangerous combo, the interrupted blood flow and scarring not only causes wounds, it slows and even prevents healing. As it happens, infection doesn't even need Raynaud's to cause us major problem just the scleroderma which is why I had cellulitis 3 times in 5 months and became so ill I nearly lost a hand and then me!

 

Auto amputating is famously, excruciating painful and happens because surgical amputation is not possible as the subsequent wound won't heal. It's not an alternative to surgery but  the last resort because of poor blood flow.

 

If you are considering self management of any wound, have a read of the personal stories about living with gangrene and amputation, which infection can lead to. One word repeats over and over again and that's PAIN. The pain associated with infections, gangrene, amputations ranges from excruciating to people being driven to the brink of suicide. Self management is great when it works but the risk if it doesn't is as extreme as it gets and of course it only has to get out of control once.

 

 

I have had foot ulcers for 4 years and I mean the same ulcer as in it never heals, just gets bigger/smaller/bigger and during that time they have been infected a few times and let me say infection means pain, I don't actually know why but I know for sure it does! Needless to say I have the nurses it quick sharp or see the doctor asap.

 

Clearly it's your choice what you do but the ISN party line is, please get medical advice for any infection and remember that Raynaud's in scleroderma can be severe.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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