greypilgrim256 Posted October 17, 2014 Since being diagnosed I have been researching non-stop about this disease and my symptoms. I've come across a few message boars and resources that describe treating Scleroderma, RA, MCTD, and other autoimmune diseases with antibiotics like minocycline. Individuals claim to have great success with antibiotic treatment, but most doctors seems to dismiss it as nonsense. I have also read conflicting NIH studies that both give plausible credit to it and some that say it is unproven. Has anyone here actually had first hand experience or know of anyone that has treated auto immune conditions with antibiotics like minocycline? This seems to be a very controversial topic. Personally, I am very skeptical of many things and it seems too good to be true, but anything to keep the powerful and toxic immunosuppresants away seems promising. Share this post Link to post Share on other sites
Joelf Posted October 17, 2014 Hi Greypilgrim, We have a medical page on Minocycline and to quote from our page "Warning: Minocycline (doxycycline) treatment has been proven to be ineffective for the treatment of systemic scleroderma by reliable scientific study." There is a lot of information on that page regarding this drug and I've also included another link to Minocycline to give you more information on the side effects, etc. which can be very unpleasant. From the information supplied I understand that Minocycline is no good for Scleroderma and should not be prescribed. Kind regards, Jo Frowde ISN Board Member ISN Assistant Webmaster SD World Webmaster ISN Sclero Forums Manager ISN News Manager ISN Hotline Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Amanda Thorpe Posted October 20, 2014 Hello Greypilgrim I recently met a woman, newly diagnosed, who had been researching all over the internet and also hit on the antibiotic cure claim. I explained to her, as Jo has you, that it has been debunked. Minocycline can cause disfiguring discolouration of the skin, as in bluish areas, even after short use and they DO NOT go once use stops. People have had to resort to laser treatment to reduce the appearance of the discolouration. Although we fully support investigating scleroderma we don't support surfing the web for the information for this reason, debunked information is everywhere except here. I am glad that, having found the information, you came here to check it out. Take care. Amanda Thorpe ISN Sclero Forums Senior Support Specialist ISN Video Presentations Manager ISN Blogger (Retired) ISN Sclero Forums Assistant Manager (Retired) ISN Email Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites