BlondeOne13

Possible Sclero new with questions.

4 posts in this topic

Hi everyone. I am awaiting my antibodies blood work results next week. In the meantime I just fought an upper respiratory virus for about a month. I woke up one day with strange feelings in both hands, they felt fuzzy and just weird. The strange feeling migrated to my toes about a week later. I can't call it numbness or tingling just an odd sensation. My fingernails hurt sometimes and my hands are little crampy. The strange sensory feeling is also affecting my forearms. The newest symptom is a feeling as though I am stepping on a tennis ball on the arch of one foot however there is nothing there when I touch it.

 

A week ago I developed Cold Urticaria. I live in Colorado and removed some ice briefly no more than 15 seconds, came into the house and my hand was swollen, red and itchy. My next encounter with snow left me with two large welts on my wrist. My general practitioner thinks I might have Sclero.

 

The weird thing is I get an intermittent rash on my face as well and occasional chills. All of my blood work has come back normal as far as blood counts, thyroid and blood sugar. My ESR result was normal and I am awaiting as I said earlier the ANA and other things she ordered. I really wanted to think that this virus just drove me into the ground and this is my body's way of reacting. But if anyone can relate to this can you please give me some insight? I can't lie and say that this doesn't scare me. Trying to stay calm but desperately looking for answers.

Thank you,

 

Amy

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Hi BlondeOne13,

 

Welcome to these forums!

 

I'm sorry to hear that you're experiencing worrying health symptoms and I can understand how anxious you feel.

 

I'm afraid that Scleroderma is a very complex and difficult disease to diagnose, not least because it presents in many dissimilar forms and affects everyone differently. As most general practitioners are not Scleroderma specialists, I'm not sure why your doctor thought that you might have Scleroderma, particularly as you're still awaiting the results of your blood tests. We do recommend that our members, if possible, do consult a Scleroderma expert as the disease has so many idiosyncrasies, of which many doctors and rheumatologists are unaware.

 

It is quite possible to have positive blood test results and yet never develop full blown Scleroderma and vice versa, so it could be that even after you obtain your results,you may be no nearer to obtaining a diagnosis; rather any diagnosis should really be made on the clinical signs and symptoms. As I have no medical training, I'm afraid I can't really advise you as to whether you have any autoimmune problem, or whether it is simply the virus you had which has led to the symptoms you're experiencing.

 

I do hope that the symptoms will subside and that you will soon feel better.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Amy,

 

I hope you get the ANA results soon and that the symptoms you have had abated and were just from the cold weather. Let us know, okay?

 

miocean


ISN Artist

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Hello Amy

Belated welcome, just as well I guess as I can't add much.

Have a look at our video "Symptoms of Scleroderma" to see whether you have any of them because you didn't mention any scleroderma specific symptoms in your first post.

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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