sara89

Burning Skin Question

10 posts in this topic

Hi everyone,

I had blood work done in June and showed I had positive Ana but when I asked my doctor he said it could be a false positive and didn't really look into it. It didn't have a titer or say which disease it was positive for. Well last week I had more blood work done and showed positive scleroderma antibodies.I have been noticing the skin on my forearms to burn and get all splotchy. It kind of feels like an friction burn or a sunburn. Is this a sign of skin tightening?

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Hi Sara,

 

I can understand your concern about the skin changes you're noticing and I do understand how worrying this bizarre disease can be.

 

However, it's very difficult to advise you as to whether this is a form of skin tightening (I have very little skin involvement, merely the tips of my fingers). I've included a link to our medical page on  Skin Involvement to give you some more information and would reiterate our earlier advice to consult a Scleroderma Specialist, as he/she really is the best person to help and advise you.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Sara,

 

Not sure we are talking about the same thing, but I wonder if this is similar:  I had Raynauds for at least a decade before I knew what it was.  It's different now, but in the beginning I would get episodes of skinny, pale (ghost white) hands or feet followed by swollen, red, angry hands or feet.  The "red" phase made my hands, feet (and ankles and wrists...) sting and burn.  It almost looked so swollen & sunburned that was about to spilt open.   But, I never had it on my forearms.  I do however have very splotchy skin on my arms and legs that I assume is from sun damage in my youth, and the use of steroids for alot of years now.  What does your doctor think?


Diffuse Scleroderma Diagnosed March 2009

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When my skin began to tighten it hurt. Anything that touched it hurt. At its height I was hard all over and my skin got really dark. 

 

Interestingly, my mother who was never diagnosed with scleroderma but had several symptoms that I am now aware of went through a period where the palms of her hands turned bright red and burned. She would soak them in ice water to relieve the pain. Her mother's feet would turn blue, which we said was poor circulation back when I was a kid. That side of the family is full of autoimmune disease, mostly lupus. I am the only  one diagnosed with scleroderma.

 

miocean


ISN Artist

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Hello Sara

 

At diagnosis I had about 60%-70% tight skin involvement. It wasn't until I had tight skin that I experienced itching, burning and hypersensitivity of it not before it tightened.

 

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Thank you guys for your input on this. I notice the red burning skin more when I am stressed, which I've been a lot lately. I am pretty fair skinned, so get red easily. I guess I am just noticing every little thing. It's crazy how your mind works sometimes.

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Can I ask how long the burning or itching lasted in terms of months or years Amanda?  Is it better now?  I only have itching and tingling when I take a shower.  Very strange. 

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I itched for years. Nothing helped. My skin was so hard lotions would just roll of it instead of being absorbed. I kept backscratchers everywhere. I felt like I had fleas! The itching went away when my skin started to soften.

 

miocean


ISN Artist

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Hello Greypilgrim

 

Don't be surprised if your skin irritates when wet, mine still does, it's a dryness issue. Wash with emollients just be careful not to slip.

 

Any tight skin is easily irritated and can cause underlying neuropathy. I still have irritated skin and now serious neuropathy. I take pregabalin and recently tried to cut it down because of weight issues, I was shocked by the fierce pins and needles sensation I experienced and upped the dose again. No way could I live with it, I would rather have the weight!

 

I hope this helps and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hello Greypilgrim

 

Don't be surprised if your skin irritates when wet, mine still does, it's a dryness issue. Wash with emollients just be careful not to slip.

 

Any tight skin is easily irritated and can cause underlying neuropathy. I still have irritated skin and now serious neuropathy. I take pregabalin and recently tried to cut it down because of weight issues, I was shocked by the fierce pins and needles sensation I experienced and upped the dose again. No way could I live with it, I would rather have the weight!

 

I hope this helps and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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