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Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

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Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 12/09/2014. (Also see: Current Clinical Trials and Scleroderma Experts)

 

This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I never qualified for any trials due to the renal failure. However, I am participating in two studies, one on pulmonary hypertension in scleroderma (PHAROS) and the other on calcinosis in scleroderma.

 

I am hoping it will help someone somewhere sometime.

 

 

I had a follow up with the PHAROS Study this week. It involved filling out a questionnaire again. This is done approximately every 6 months. I found out I am one of 37 patients in the study under my doctor. It is a national study and there are many other doctors participating. I was told there are two more years for it.

 

I hope this study helps find answers to pulmonary hypertension in scleroderma patients.

 

miocean

 


 


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I am at 6.5 years of participation in the PHAROS study and have donated blood to several genetic studies - any participation in any way is so valuable. As Miocean pointed out, even if one doesn't qualify for a clinical trial, there is still a way to give researchers data that might someday lead to a cure.


Jeannie McClelland

(Retired) ISN Director of Support Services

(Retired) ISN Sclero Forums Manager

(Retired) ISN Blog Manager

(Retired) ISN Assistant News Guide

(Retired) ISN Artist

International Scleroderma Network

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Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. (Also see Current Clinical Trials and Scleroderma Experts) Posted 12/09/2017.


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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