sara89

Arizona Scleroderma Experts

3 posts in this topic

I am looking for a 2nd opinion on my positive scl 70 test.I saw one rheumatologist who says I don't have it. All he did was observe my skin and joints. I do have digestive problems.

 

I tried getting in to the Mayo Clinic in my area but they don't have openings till March.

 

Does anyone know of a good sclero expert in Arizona? Thanks

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Hi Sara,

 

I'm afraid I haven't been able to find a Scleroderma specialist in Arizona, but I've included our list of Scleroderma Clinical Trials Consortium (SCTC) Scleroderma Centres where you may be able to find a specialist near to you, to whom you could obtain a referral.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Sara,

 

The Mayo Clinic Scottsdale is a scleroderma center, and most of us would say that larger centers are well worth the wait, if there's no urgent problem.  It is very common to encounter three to six months waits for a first rheumatology appointment in most parts of the U.S. for noncritical cases. In the meantime, you just seek all the usual care from your normal providers to manage symptoms, and as scleroderma is often managed by only treating symptoms as they arise, you likely are not missing out on much -- particularly since it is an average of six years from onset to diagnosis for women in the U.S. (and three for men with the same symptoms).

 

I know how hard it is to wait, but at the Mayo you are very likely to get a really thorough evaluation so you'll feel confident about your care going forward.  But of course we will support whatever decision you make, and wherever you end up!

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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