3 posts in this topic

Hi does anyone else on here have morphea scleroderma?  I'm trying to find out more about this very rare condition. Thanks.

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Hi Jintybaby1,

 

Welcome to these forums!

 

I'm sorry to hear that you're suffering with Morphea; thankfully, I don't have this myself, but we do have many members who suffer with this. We have a wealth of knowledge about it in our Medical Pages and I've included links to Amanda's UK Scleroderma Support Resources which includes two posts on the different types of Morphea and also the recommended treatment of UVA1 phototherapy.

 

I've found you a couple of threads Morphea and Methotrexate and My Story so far which I hope you'll find helpful and informative.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hello Jintybaby

 

I have both systemic scleroderma (diffuse), localised scleroderma (morphea) and  bullous morphea (blistering morphea) and have had since diagnosis in 2007. I have never had any treatment specific for the morphea just because it always came second to the systemic scleroderma and any treatment for the systemic must have benefitted the morphea.

 

The blistering morphea is a problem though, it's very tender where the blisters are and when they burst they can ulcerate and as I am somewhat prone to cellulitis, this is a risk I don't need.

 

Morphea in its basic plaque form can be treated and managed but like any type of scleroderma it can cause many problems, it all depends!

 

Are you being treated by a dermatologist well versed in morphea?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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