hopeforhope

Singulair and Scleroderma

4 posts in this topic

Hi, I was just recently introduced to the sclero community. My ten year old sister, Hope,  has been diagnosed in the last year. She is currently working with her doctor to find a treatment method. This is all new to our family and we are still learning about a lot of the struggles that come with this diagnosis. 

We are now looking into the correlation between her medication (Singulair) and her diagnosis. Is there anyone who has taken singulair and was diagnosed with sclero?  Would you be willing to talk with me?

 

As I said, my family is still new to this diagnosis and are researching and trying to learn as much as we can to help her. Thank you to anyone willing to discuss this with me. 

 

 

Share this post


Link to post
Share on other sites

Hi hopeforhope,

 

I am sorry to hear about your sister's diagnosis but am glad you are there to support her. What kind of scleroderma has she been diagnosed with?

 

I was on Singuliar a long time ago. I looked up the correlation of the drug and scleroderma and read that of over 41,000 people who have taken it, 35 have developed scleroderma. This is interesting and I hope they investigate it further.

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Hi....welcome to the group.  I am sorry to hear that your sister has scleroderma, especially at such a young age.  My son was diagnosis'd with UCTD at age 18.  He has always had exercise induced asthma and was put on Singulair several years AFTER his diagnosis because his asthma had gotten worse.  Quite interesting thread here!    :emoticon-dont-know:  It has helped his asthma.

 

Take care, Everyone.

Margaret

Mom to Gareth, 26 years old, DS/ASD

Share this post


Link to post
Share on other sites

Hi Hopeforhope,

 

Welcome to these forums!

 

I'm very sorry to hear that your sister has been diagnosed with Scleroderma and I'm sure you'll receive lots of support and help from our members.

 

I've included a link to Singuliar and also to our page on Juvenile Scleroderma to give you some more information. We do recommend that our members, if possible, consult a Scleroderma specialist as this is such a complex disease with so many little idiosyncrasies, which does require specialist knowledge.

 

In order to help with your research, we have a wealth of knowledge in our Medical pages which I hope you'll find interesting and helpful.

 

Please do keep posting with any further queries you have and we'll try and help you.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now