Pinetree

Fingertip amputation

23 posts in this topic

Hi Pinetree,

 

So sorry your finger has had a hiccup in its healing.   Those of us who get ulcers are well aware how difficult they are to heal and how frustrating it can be.

 

Just one little reminder while you are on high doses of antibiotics is to keep up with probiotics at the same time to avoid the distressing diarrhoea that can ensue.  The last thing we need is more complications.

 

Best wishes for your recovery

Judyt

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Isn't it amazing just how painful infection is?If you have any doubt let me assure you that it can cause pain like you've never known.

 

I have had cellulitis in my right hand, left thigh, right shin and right toe. For my hand I had 10 days in hospital with IV antibiotics (sudden, high temperature with erratic behaviour) took me to hospital not the pain, this wasn't because it didn't hurt but because I was used to grinning and bearing pain from scleroderma! Mind you whilst in hospital I longed for them to relieve me of my hand, see my blog The Nurse and the Cannula for more details. It was excruciating and I longed for them to operate but they didn't. For my left thigh I had IV antibiotics at home, no pain thankfully and the reason for IV instead of oral antibiotics was because the infection was too close to my femoral artery. For my right shin I had IV antibiotics because it was right on the bone and I ended up in hospital for 5 days because of dehydration and AKI. For the right toe 4 weeks of oral antibiotics and it's only because the pain quickly improved that I settled for tablets!

 

When my foot ulcers were infected they became more painful as well as more fragrant and gooey! 

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hello Pinetree

 

Have a read of my blog You like me, you really like me! because when first ill it is usual, unfortunately, to have our symptoms under appreciated by a doctor somewhere along our journey. We so want to trust our doctor, believe them competent if not expert in scleroderma and if we like each other...oh such joy! Alas this often fails or is never present to start with, we all long for it because who wants to grapple with personality and ego when already really in or in pain? Not me and add to that struggling to survive a relentless disease...really not me!

 

Not only do we have to be knowledgeable about our disease so we can educate doctors as necessary but sometimes we encounter attitudes and egos along the way but when we do we really can't afford to let it affect our treatment. In other words we have to, as Sweet so succinctly puts it, be our own advocates or try as best we can.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Pinetree,

So sorry to hear you have had to endure another operation, you're having quite a rough time. Really hope things improve although this may be a slow process. Patience is an absolute necessity for us in the scleroderma club.

 

Amanda I so know what you mean about wanting your medical team to be wonderful. I used to feel this weird need to almost be able to brag to family and friends "oh yes darling. My consultant is absolutely blooming marvellous".

 

Just read your blog the nurse and the cannula - hilarious. It sounds like patience and restraint were required at the time.

 

 

Take care folks
Helen

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Hi Pinetree,

 

Is your finger healing properly, this time around?  I really hope that your healing journey goes smoother this time around.

 

Did you know that stress can reduce wound healing?  We had a marvelous article, which I think is expired now, about how even a single argument among married couples can slow down the healing of a wound by several days.

 

I say it is marvelous because it gives all of us a huge incentive to reduce all sources of unnecessary stress in our lives and to increase our emotional resilience. I suspect what happens is that we all have only so much energy to work with each day, and every bit of stress gobbles up some of our energy.  It takes tremendous energy for our bodies to heal, thus, stress (or doing too much of anything), depletes the energy that we need for healing.  Of course, my theory could be entirely full of it!  But it can't hurt, and might help, to maximize relaxation in your life right now.  It's a great time to tune out the negative, put on lovely music, relax with a (decaf) tea, and take a luxurious nap.

 

A cheerful tune for your healing journey could be, "Don't worry, be happy!"  We're all eager to hear how things are progressing, and hopeful that they are now going in the right direction.  Keep us posted, okay?

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi,

Things seem to be progressing smoothly this time round, although I keep obsessing about every little twinge and sensation and sort of dreading what I will see every time the dressing comes off for a change. But so far so good! I am now off painkillers for the first time in three months :) Coming off some of the stronger ones was quite an experience, I spent a full day in tears and another couple cranky as anything. I go back to work on Monday, after working from home today and tomorrow, my boss has been a real star in all this. Really looking forward to re engaging with life as I have been feeling as if I had dropped out of it. I went out today on a non-hospital related trip for the first time in three weeks, it was only to the shops but felt great.
I agree that stress makes everything worse, and I am a born worrier, but my husband has been really supportive and a real rock, making sure I did not get carried away with stress and negativity.
So, hopefully out of the woods, but not shouting it from the roof tops just yet.

PS. I did have a try at posting some photos but did not manage to create a member album. Will try again soon.

Cheers,
Pinetree

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Hi Pinetree,

 

I'm really glad things are going better for you. How have things been going back at work? 

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Pinetree

 

Good, good and even better!

 

Remember to be kind to yourself, for instance, if you were on prescription painkillers for 3 months you should have titrated down and then off of them rather than go cold turkey. Doing so not only causes us emotional stress but can also stress the body and be dangerous because we become physically dependent on any chemical we take for an extended period of time. I say dependent not addicted, that's another matter.

 

I have titrated down and off sleeping tablets, steroids and decided to abruptly stop amitriptyline after being on it for a number of years and then wondered why I was a wreck for weeks. Duh! We've all done it but no way am I doing it again!

 

Also be kind to yourself returning to work, I don't know how long you were off for but when I was off for 3 months I had to do rehab hours on my return and it took a month to build back up to full time! I was amazed at how hard I found it and really did need to start slowly.

 

I understand dropping off the edge of the world, I did 7 years ago and am still waiting to come back! :lol:  :lol:  :lol: 

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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