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Hyperventilation Appointment

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hi everyone!

 

Last year my physio referred me to the Hyperventilation team at the hospital because I was having shortness of breath.

 

I didn't think I needed to see a hyperventilation specialist, but I thought I would humour my Physio. It has taken me this long to get to see them.

 

Let me say she was wonderful! Such a kind caring lady with a very holistic view of everything.

She told me my chest pains which I have pretty much every day is Costochondritis which can be caused by a number of things, but she said my breathing was so bad, that if she could get me to breathe properly that might help.

 

Now to be honest, I didn't think my breathing was bad at all! I occassionally get short of breath for no apparent reason, but didn't associate it with breathing incorrectly (which I know sounds stupid when I put it like that !)

 

She said I breathe in my chest (which is wrong) instead of my stomach, which means to don't breathe deep enough so I am accumulating carbon dioxide, so I am living on the edge of every day and any tiny little stress, like a bad day of sore joints could cause me to breathe slightly more rapidly and because I was already breathing shallow that would give me sudden shortness of breathe without really realising the cause behind it. I hope that makes sense.

 

She of course doesn't know the reason I breathe this way. I could be medical, or a learned behaviour because I have a crooked spine that I breathe shallow to avoid pain in my back...etc..

 

And I am not breathing through my nose which in turn is stopping me from breathing through my diaphram. It was all very interesting.

She said even after teaching me how to breathe correctly, my costochondritis may not go away, as it may have a medical cause.

But learning to breathe correctly through my stomach and not shallowly in my chest may ease a bit of the inflammation.

She said "wet heat" helps costochondritis, like a hot wet tea towel, placed on your chest, I don't know, but I may try it. Can I write that on here?

 

I have to see her for probably 6 weeks as she said it takes a while to retrain your breathing patterns, but she was very interested in me on the whole with also finding out if I have Scleroderma, my GI issues and my Tinnitus issues, she made me feel very validated and I was very glad I saw her.

 

I honestly thought I would see her once and say hey, there is nothing wrong with your breathing, you just get a bit SOB sometimes, but she is the kind of person who wants to know why and how to fix stuff, which is a refreshing change from some of the doctors I have seen.

 

well I have rambled long enough, and I don't even know if any of it was scleroderma related, but you know me, chatty chatty!!

 

Hugs,

Irene

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Hi Irene,

 

This all sounds very intriguing. I subscribe the the holistic regime, and I'm always interested to hear about new things. Thanks for your update and I'll look forward to hearing more as time goes by. :)


Your Friend,

 

Gi Gi

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Thanks Gi Gi,

 

your always so encouraging!!!

 

She was great, and gave me a few good tips about some natural things I can try, and it was things I had heard of before, so that validated them even more!

 

hugs,

Irene

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Irene, YOU may think you're chatty, chatty... I, on the other hand, found the your information very interesting :rolleyes:

You could be me! I was diagnosed with Costochondritis also... however, I knew that I breathe shallowly and not from the stomach and I know why. I went through a very traumatic experience years ago and I haven't changed that horrible breathing habit, even though I'm aware of what I'm doing. As a result of your thread, I'm going to work on changing that... thanks to you B)

Big Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Susie,

 

you have made my day! I wasn't even sure whether or not to post it as I didn't know if anyone would find it interesting..........but I thought I should share just in case it could help someone, and I am so glad I could!

 

I have to try and remember to breathe through my nose, I didn't even notice that I wasn't doing that! But of course as soon as you open your mouth you 'gulp' in air, but not enough, and that is why breathing through your nose is important.

 

I wish you all the best!

 

big hugs,

Irene

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Irene,

I had chostochondritis in 1981 and it was some of the worst pain I ever endured. I had been hospitalized for a pelvic infection and by the time I got home I had to go back to the ER. The pain was so bad I thought I was having a heart attack. This sounds interesting I have been told that I breathe incorrectly that I need to breathe through my stomach.

Take care!

Nan

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Guest Sherrill

Hi Irene,

 

All this is interesting stuff! I have come across some of it in the past, and I'm sure I am also guilty of breathing incorrectly. But it's so hard to keep reminding yourself to do it properly when it's probably a lifetime's bad habit!

 

I also had chostochondritis a few years before I got scleroderma. I often wonder if that, plus a few other things, were forerunners of the sclero!

 

Let us know how you get on with the breathing exercises etc. I hope they help you!

 

Warm hugs,

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I went to a breathing clinic about 15 years ago and they showed us how to change our breathing habits. One of the things taught was to exhale completely, then don't inhale before trying to breathe out one more time. By this time you may feel a bit faint and you will have no trouble doing a deep inhale through your nose with your mouth closed. Most people don't breathe properly and use only the top 30% of their alveoli capacity. By doing this exercise regularly, you learn to clear out more of the stale air which in turn allows you to take in more fresh air. Other things touched on in the class were posture and exercise.


Warm wishes,

Jefa

 

Carrie Maddoux

(Retired)ISN Sclero Forums Support Specialist

(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

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Hi Irene,

Well... I'm glad I made your day, because you really did bring up an interesting topic.

Aside of that, I'm so glad you chose to post it ;) !

 

I have a problem though... I'm unable to breathe through my nose.. deviated septum.. have had it broken several times and the final alteration came with

the Scleroderma.... What would the next best thing be... second to breathing through my nose :blink: ?!

Special Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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well, Susie,

 

I think you have a problem there!!!! I think you are stuck breathing anyway you can, and I guess its through you mouth :D

 

My hubby is getting his nose fixed in a few months, it doesn't sound fun at all. He has sleep aponea and can't breathe through his nose. He just had his tonsils out and his soft palate moved forward to help but still has to use his cpap machine at night.

 

You must find it hard sleeping and wake up with a dry mouth I suspect?

 

hugs ;)

Irene

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Hi Irene,

I'm slow to reply... sorry!

I hope the procedure your husband is going to have... helps with his breathing (through his nose).

Yes... I believe I am stuck with mouth-breathing. Yup, adding insult to injury... I also have sjogrens.... recently began taking Evoxac to help with that. .. Oh well...

Hope your week goes well :) !

Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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