Sweet

Disability Review

7 posts in this topic

Hello, 

 

I just received paperwork for my first disability review. I was granted SS Disability in May of 2008. It is a simple one page questionnaire of 6 questions for ME to answer.

 

It doesn't appear anything has been sent to any of my doctors. Is this standard?


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Sweet,

That is what I received but I found it difficult to fill out. It asked for the doctors I had seen over the past couple of years and gave me three spaces. I see that many doctors in a month!

 

So this is what I did: I contacted all of my doctors and asked them for my visits for the time period asked for. When I received the pages and pages I blocked out personal info and made 2 copies of it, one to send SS and one for me. I wrote a cover letter explaining how difficult it was for me to fill out the form and sent it all in a manila envelope, signature required so I would know they received it. I decided to let them see what it was like to wade through all that data. A few months later I received a letter saying I was able to continue my benefits. 

 

I probably overdid it but I wanted them to know exactly what my life was like, especially since I had the kidney transplant and many can go back to work after. Best of luck and I am sure things will work out. Just be thorough.

 

miocean


ISN Artist

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Thank you Miocean,

 

This is pretty straightforward and easy to fill out. It's so minimal so that's what seemed strange. I guess I thought they would be contacting my doctor about this not me.  I will answer the 6 questions which are basically yes and no answers, and fill in my 3 most recent visits, which is all they are asking for. 

 

Thanks for your input!


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Sweet,

 

After so many years, it would probably take a downright miracle to cure you, especially of scleroderma. They know that.

 

They just need to follow up to make sure you aren't somehow back to work full time, without having let them know about it. Just fill out what they ask for and send it back in. If they need any more info, they will let you know.

 

Miocean's situation is a little different, as they typically review people who have had transplants, or major life-changing treatments, to see if they are now cured and able to return to work full time. But unless you've enjoyed some tremendous curative treatment for scleroderma that has had you bouncing back to work full time, you hardly have anything at all to worry about...except, unfortunately, still being sick, and still not being able to work full time.

 

:emoticons-group-hug:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Can't say for sure, but it appeared to me that they just wanted to verify one was still truly disabled and not able to earn an income, and to verify SSDI recipients are not defrauding by collecting disability while earning an income at the same time.  


Diffuse Scleroderma Diagnosed March 2009

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