• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
Sign in to follow this  
Followers 0
Margaret

Scar tissue

6 posts in this topic

Hi Everyone....does anyone know how/if scleroderma/UCTD affects scar tissue?  If a person has surgery, does it affect the way the scar heals and does it make the scar tissue grow (as from a small scar into a big scar) ?  

 

Thanks,

Margaret

Mom to Gareth, 27 years old, DS/ASD

Share this post


Link to post
Share on other sites

Hi Margaret,

 

As luck would have it, I've just had fairly major surgery on my hip and have the most beautiful scar to show for it! :wink:

 

I've found that it's healing very nicely; obviously it's still at the healing stage (nine weeks), but if it carries on the way it's going, I'll probably just end up with a faint line. The same thing happened with my bilateral carpal tunnel scars; they're barely visible now (six years on.)

 

Of course, other people may be affected differently; I have a friend who doesn't have Scleroderma, but unfortunately he has had keloid scarring after major surgery, which is due to over production of granulation tissue and it has delayed the healing quite a lot.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Margaret,

 

Are you contemplating some sort of surgery for Gareth, or just curious. overall? Here are some hugs just for Gareth:

 

:hug-bear: :hug-bear: :hug-bear:

 

It's my understanding that they used to advise scleroderma patients to always avoid surgery, if possible, because of concerns about healing. Then, years ago, they did a study that found, on average, a normal healing process in scleroderma patients. It was felt that overall there was no increased risk of infection or too much scarring. It is possible for anyone to get infections or a keloidal reaction; it is not unique to scleroderma.

 

People with scleroderma (or similar diseases) should discuss surgery plans with their rheumatologist or scleroderma expert.  Often it is necessary to change medication plans before surgery. Some people may need extra precautions for infection, especially if they are immune suppressed. And certainly if there is a history of difficulties with surgery or poor wound healing, that should be considered.

 

Overall, I think it's a good plan to stringently avoid unnecessary surgery with scleroderma or any severe illness. But I have had a great many necessary surgeries over my lifetime, with entirely normal healing in the aftermath.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Hi Shelley,

Gareth had sinus surgery four years ago, and again, last July. Both were necessary after chronic, unresolved infections in sinuses and left ear/mastoid and he was not on IV Ig infusions at the time.

 

Over the past month, he's been on Doxycycline for ten days, then a steroid plus Flonase, then ten days of Levaquin. The Levaquin cleared up the sinuses enough for the ENT to see he has *major scar tissue partially blocking the left sinus*. He said this is what led to the infection because his nose couldn't clear the initial cold/infection. He's taking a *wait and see* approach since this is the first sinus infection since last summer. He's keeping him on the Flonase to see if it prevents another severe infection. He still gets his his monthly IV Ig infusions....which is a good thing. I'm just surprised he couldn't fight this sinus infection without going on Levaquin.

Jo, I'm glad to hear that you're recuperating well! With only a faint line, you can still wear the bikini :lol: :lol:

Thanks :thank-you:

Share this post


Link to post
Share on other sites

Hi Margaret,

 

Unfortunately, scar tissue can build up after any surgery, even without scleroderma. And it creates a catch-22 because sometimes removing it can cause even more scar tissue. Sinus infections can become chronic, as you have discovered with Gareth. Just keep on treating it.  You've managed to pull him through so much, already! 

 

Here are some more bear hugs for Gareth: :hug-bear: :hug-bear: :hug-bear: :hug-bear:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

Can I add to the question, what about surgery directly involving tight, hard skin?

 

When I had a biopsy pre diagnosis and when I had my big toe nails removed, the stitching was problematic. As the skin was tight it wouldn't stretch, actually tearing instead.

 

Should this ever prevent surgery? When I had cellulitis in my right hand they didn't operate to relieve the infection because of the scleroderma and I wonder how the wound would have been stitched up had they operated?

 

I'm sorry Gareth might need surgery, he certainly had been through it. Whatever happens, I hope Gareth gets relief/better.

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
Sign in to follow this  
Followers 0