• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
jennuwhine

Hi everybody! So nice to see others like me.

8 posts in this topic

Hi. I was diagnosed with Systemic Lupus a few years ago after many years of searching for the right diagnosis. I was also diagnosed with Raynaud's and Hughes. Two weeks ago I was also diagnosed with  scleroderma and need to be tested for Sjogrens and Fibromyalgia. There really aren't very many people with this. I was wondering why none of my lupus friends could relate to some of my symptoms. Now I know why.

 

I haven't gotten the official word on which kind I have, but I strongly suspect systemic as I have pulmonary issues and my muscles in my upper arms are hard as rocks and don't work anymore. Has anyone found any natural treatments that help? I am allergic to most medications thanks to the lupus. Thanks and it's so nice to meet you all.

Share this post


Link to post
Share on other sites

Dear jennuwhine,

 

Welcome to sclero forums! Sorry about your multiple diagnoses but know you have found the right place for answers, support, and even a place to whine. I hope they don't add too many more to the list.

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Dear jennuwhine,

 

Welcome to sclero forums! So glad you've joined us but sorry it's due to all the diagnoses you are dealing with. You've come to the right place for accurate information, talking to those who truly get it and friendship. 

 

Are you seeing a scleroderma expert?


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Jennuwhine,

 

Welcome to these forums!

 

I'm sorry to hear that you've been diagnosed with Scleroderma and are also suffering with Lupus and other associated conditions.

 

Sweet has given you good advice regarding consulting a Scleroderma expert and I've included a link to our medical page on Scleroderma in Overlap. We have a lot of accurate and up to date information in our Medical pages which I hope you'll find helpful and informative.

 

Please do keep posting and let us know the results of your tests for Sjogren's and Fibromyalgia.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Thank you so much. I will check it out. No, I just found out about the scleroderma, so I have not yet even seen a rheumatologist for that issue. Waiting for my referral to go through. I imagine it's best to see an expert because of how rare this is. I'm very surprised that a family doctor in a small town even knew to check for it. All my family members will be seeing him from now on.
Thank you for the welcome.

Share this post


Link to post
Share on other sites

Not yet. I've been calling, but I keep getting the machine. I'll try again tomorrow, and if nothing, I will be going to the office. Thanks for asking.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now