quiltfairy

Saw my ENT

10 posts in this topic

My ENT questioned me a lot about previous head injuries. I had had one in 2007.  I still have the indent in my head from it  and most of my doctors tell me I am lucky to be alive.

 

Anyway my ENT said that I had shook loose the crystals in my ears, and that is what is causing my dizziness -- not fluid in my ears. I learned something new that day as I did not even know that we had crystals in our ears and that they helped us keep our balance.

 

Which reminds me, in 2007 my neurosurgeon told me that crawling on my knees like a infant would help to bring my balance to my brain. Well it helped but I still have short term memory loss. The act of crawling and the shaking the head back and forth like an infant is how an infant gets balance to learn to walk with out falling over.

Anyway, it is time to rest my brain from all the memories of 2007.

 

Oh by the way, I was diagnosed with scleroderma in 2008, about one year to the day of the head injury.

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Hello Quiltfairy

 

The crystals are sensitive to gravity and are called otoconia. There's all sorts in the ears, everything but the kitchen sink, well, not quite but I also thought the ears just contained fluid which regulated balance, not crystals.

 

Per Mayo Clinicfor a variety of reasons, these crystals can become dislodged. When they become dislodged, they can move into one of the semicircular canals — especially while you're lying down. This causes the semicircular canal to become sensitive to head position changes it would normally not respond to, which is what makes you feel dizzy.

 

There are treatments, ranging from simple to surgery. How fierce are your symptoms and may I ask how you hit your head?

 

Take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi Quiltfairy,

 

My husband suffers with Meniere's Disease and was told that it could cause crystals to form in his ears. He used to get terrible dizziness and vomiting, although those symptoms have abated a bit since he retired, leading us to conclude that stress makes the disease worse (as with most things). It has also caused deafness in one ear (I call it "selective" deafness, so he can't hear my chatter!! :wink: ) and tinnitus.

 

Obviously, it's impossible to say whether your injury was a direct cause of you developing Scleroderma, but perhaps it could have been a contributory factor?

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I was loading a load of hay up in Canada. There were a couple of us throwing straps over the load to secure it from falling off the trailer.

 

One of the straps hit me in the head by the steel hook end. It made a permanent dent in my head, fractured my skull and blew out c5-c6 disk bad enough that the doctors called it a broken neck.

 

I have no memory of this happening. I just know what people have told me about it. Several doctors have said I am lucky to be alive.

 

This is why I had neck surgery and what caused the crystals to come loose in my head. I deal with short term memory loss and other issues. I have learned to cope with most of it by writing notes and setting a routine for daily functions like locking the doors at night. My dog Mariaha lets me know if I miss something. I have to stay in the kitchen if I have something cooking or I burn it, but that is getting better as time goes along.

 

This happened in May of 2007. My neuro surgeon has told me if workmens comp had let him do the surgery right away things would be very different and if they had let him do repairs on nerve endings things would be different. My company I was driving for almost killed me. I had significant brain swelling and they refused to let the doctor treat it. So I'm very thankful for every day that I am alive.

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Goodness me, Quiltfairy, I am sorry to hear about the cause of your head injury.

 

It certainly sounds as if you are very lucky to have survived it and it's a real shame that your works company didn't do more to help you. :sorry: 


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I have never heard  of crystals in the ears and what you shared is very interesting. It's too bad how we learn these things though, isn't it?

 

miocean


ISN Artist

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Amanda, thank you for the explanation of otoconia (ear crystals). I'm continually amazed by how much I can learn around here every day, and that chalks up as one of those cool new things to know.

 

Quiltfairy, I'm sorry for your injuries. Thank you for explaining them. That sounds like an awful lot to deal with, on top of the effects of scleroderma.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Loose crystals?! Quiltfairy, I'm amazed you don't have a loose head, one that just kinda swings around of its own accord after that! You did well to survive for sure. No doubt you manage the repercussions with your usual aplomb. 

 

Take care. 


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hi,

 

Over the years I have had episodes of Benign Positional Vertigo which causes dizziness and vomiting.   This is another thing which is caused by the crystals in your ears moving.   There are some simple exercises one can do to help stop an episode but I found that it would last for two or three days sometimes in spite of me doing the exercises.

 

However, that is better than the first time, before I knew what was going on, when it lasted at least a week.

 

Judyt

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Hi All,

 

There's an interesting way to try to figure out if dizziness is caused by ear crystals or something else.

 

I have typanosclerosis (an autoimmune ear disease) and dizziness, also. However my dizziness is caused by orthostatic intolerance and not by ear crystals.

 

You see, ear crystals cause dizziness when laying down, or even rolling over. But orthostatic intolerance causes dizziness when getting up or when standing for too long. In orthostatic intolerance, the blood pressure drops upon arising.

 

Therefore anyone experiencing chronic dizziness should really pay attention to precisely what position, or other situations such as heat or anxiety, triggers it for them (if any) as that can speed up diagnosis and reduce visits to unnecessary specialists.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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