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Dee L

Scleroderma affecting my Sex Life

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Yes, Amanda, I agree it's tough to not be able to show our love the same way, when illness intervenes. I really dwelled on the topic when I was bedridden so long.


What really struck me then was that we both madly loved our parrot, Webstergirl, who was comprised of about 2 ounces of feathers, went potty anywhere she wanted, and never worked a day in her life. She was basically worthless!


So I figured, I brought more than two ounces to the table. I at least tried to be careful about where I went potty. And I would simply have to accept that I was loved anyway, for who I am rather than what I could do. One thing I could do, just like Webstergirl, was love with all my heart and try my best to show it.


When we can't do love, we can still be loving. We can be there for others, in fact, maybe even more so as we aren't distracted by our super busy life anymore.

Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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