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Tbhof

Scared and need advice

28 posts in this topic

"There's something weird going on..."

 

Truer words and all that Tbhof!

 

Well, even if you don't end up having scleroderma, your statement means you qualify for membership of this forum. For sure!

 

There's plenty weird here and I don't just mean disease!

 

Thanks, you really made me chuckle!


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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Hello Tbhof

 

I just remembered something, leading up to my diagnosis, I had long brown marks running from my wrists up my forearms ending just short of the elbow crease. The marks were on the underside of my forearms and looked a bit like an old bruise. They were painless.

 

This was followed by my wrist joints becoming fixed and then my hands and fingers became fixed, completely straight. This was because the skin, elbow down to fingertips, had hardened. Of course I didn't know that at the time.

 

I have atypical systemic scleroderma, my diseases didn't start with Raynaud's and fingertip involvement.

 

Hope this helps.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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I'm glad I made you chuckle Amanda :-)  We can all use a good smile now and then. Of course I hope it's not scleroderma but I'll take the membership! My marks are brown and they are on my palms under my thumb area just above my wrist. They can be painful at times. I have no brown on my forearms but the undersides of my forearms get these weird creases in them when there's been pressure. Such as holding my baby. The skin doesn't feel different or look different there though. How quickly did the brown marks come for you? Was the texture different?

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