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miocean

Diarrhea and Dehydration (again!)

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Amanda, I am sorry you have hit another bump in the road. It's so frustrating.

 

I received the results of the biopsy and the great news is that I am not in rejection. I do have vascular or tubular damage that is fortunately repairable. This is most likely due to dehydration and a rise in my prograf (tacrolimus) level. Even though the transplant drugs keep you from losing your kidney, they are also nephrotic to it. I will be monitored closely for the next 6 weeks with frequent labs to make certain all is in the normal range.

 

Thank you all for your kindness. I am very happy with the results and plan on a upward trend here!

 

miocean


ISN Artist

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Hi Miocean,

 

So, have you heard any results from your biopsy yet?  Fingers crossed for you that it is good news...

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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My doctor  called yesterday with the results of the biopsy and lab work. As far as the biopsy: I have vascular damage to my kidney, probably caused by a high prograf level due to the dehydration that is repairable. There is also some stenosis and he doesn't know if it was there from the donor or something new but it is not scleroderma renal failure. Of course, I thought of all the good questions to ask him this morning, like did the stenosis show up in the biopsy 4 years ago? I also have the report of the donor kidney that showed some scarring but I am not sure what that means in regard to the stenosis. He became my doctor after the transplant and the report is probably buried in my huge file from all the years on dialysis.

 

There is improvement with the changes to the medications. I am not longer spending hours in the bathroom every morning. I started physical therapy and I am working on being stronger. I am taking a mini-vacation from medical issues for a few days. I need some medically free days! 

 

miocean


ISN Artist

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Hi Miocean,

Well, it's certainly good news that the vascular damage to your kidney is not scleroderma renal crisis and also that it is repairable and therefore can improve. How easy it is to think of the right things to say after the event! :wink:

I'm so pleased to hear that your medications are improving things for you and if you're not beating a trail to the bathroom so often, hopefully that will help with the dehydration and thus start repairing your kidney.

As I'm now able to cross my fingers (albeit very stiffly!) I'm crossing them for you hoping that you'll continue to improve!

:hug-group:


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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