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Tbhof

Raynaud's Symptoms

10 posts in this topic

I have questions about Raynaud's. Does the entire finger change color? Meaning the top and back and all the way around? My fingers go pale but only the tops of them. The backs of the fingers look normal.

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Hi Tbhof,

 

That's an interesting question.

 

Mine go dead white all the way around, front and sides and back.  I've never even thought that it wouldn't occur that way, all the time, for everyone with (verified) Raynaud's.  So I'd be very curious to see what others have to say about it.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Tbhof,

 

I have Raynaud's and as Shelley has said, my fingers go completely white, sometimes from the knuckles up to my finger tips, particularly if I have a bad attack. Situations like air conditioning in shops and cool temperatures which mean my core temperature becomes low can cause an attack. We have a very damp,cool climate in the UK,which doesn't help the arthritis in my joints either.

 

I've included a link to our Raynaud's Main menu which will give you some more information about this unpleasant condition.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hello Tbhof

 

My understanding is that not everyone with Raynaud's experiences the full colour change when they have an attack.

 

My fingers go a bit pale, ironically they did go white pre scleroderma, but cramp is the worst symptom I have now and yes, it is a symptom.

 

I didn't know that I had Raynaud's until I was diagnosed, using thermography and capilleroscopy, just after being diagnosed with scleroderma.

 

Mind you, I have mild Raynaud's and I reckon that is why I have NO colour changes.

 

Hope this helps and take care.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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If fingers go pale, just the tops of hands, when cold, with no other symptoms, is that likely to be more of a cold intolerance?

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Amanda when your fingers went pale was it just tops or undersides or all the way around? All the pics I see online show the backs of fingers white. The tops of my fingers go pale but the backs look totally normal

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Tbhof, if you think you may have Raynaud's, the thing to do is to go see your primary care doctor about it.  Raynaud's is very common so they are generally quite good at recognizing it, and sorting it out from other ailments.  And if they think you need vascular lab testing, you could get that done before you see the rheumatologist. 

 

Any little thing that you can pin down BEFORE you see rheumatology is a good thing. Otherwise, with it not documented, they are more likely to readily dismiss your concerns if there is nothing specific to point to. It's very different to say, I think I might maybe have Raynaud's, versus, my primary care doctor thought I had Raynaud's and sent me for vascular lab testing, and here are the results of that test.

 

It just completely removes it from the realm of speculation, for both you and the rheumatologist.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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I have Raynauds and the whole of my fingers and sometimes my whole hand and part way up my arm can also do it, then they do all the other colour changes! 

 

Buttons

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Hi Tbhof, 

 

My first experience of Raynaud's was just the tip of one finger but it progressed to all fingers and then to the hands as well. The severity of the attacks depend on the situation: how cold it is and how long I am cold for, etc. 


Charliehorse

 

Life is better with Jeeves and Wooster

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