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beverly

What Is Myositis?

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Does anyone suffer from this along with there scleroderma. If so what are your symptoms, do you have a rash?

 

Thank you

Beverly

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Hi Beverly,

 

There's "regular" myositis, dermatomyositis, and polymyositis. Dermatomyositis is the type that includes a very specific type of skin rash. For more detailed info, see:

Skeletal Involvement: Myositis (Muscle Inflammation)

 

Janey has dermatomyositis, as well as some other members, and I'm sure they'll eventually pipe in with more responses.


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Beverly,

Dermatomyositis (DM) and polymyositis (PM) are connective tissue disorders, just like scleroderma. However, they specifically target the proximal muscles (between the knees and the neck) and in the case of DM you get a rash along with the muscle inflammation. I actually have PM so I have muscle weakness but not the rash. My main symptom is muscle weakness. Prior to starting my meds I lost most muscle strength: unable to go up steps, get up out of a chair, lift my head off a pillow or raise my arms to wash my hair. The meds and treatments have stopped the inflammation and I've been able to get a lot of the strength back.

 

A blood test for your CPK (or CK) is a good way to test for myositis. Hope this information and the link helps. As Shelley said, there are several of us with this overlap and I know some members have the rash of DM.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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What is the rash like and where? Does it itch like crazy on your trunk and under your arms? Thank you for the links and information.

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Hi Beverly,

 

I have Mixed Connective Tissue Disease (Scleroderma and Dermatomyositis). The muscle pain and fatigue are some of the most common symptoms that I experience. I have them after very little effort or exertion, and whenever my CPK level is high. I also experience muscle weakness and lost.

 

I have the kinds of rashes that are common in dermatomyositis (DM), including around eyes and on eyelids, but most of them do not itch. I do know that many with DM report rashes that itch like crazy. It is only recently that I have had a rash on my trunk that does itch.

 

Best wishes,


Ron

 

Updated 8/10/07: Mixed Connective Tissue Disease (dx 03/2002). Diffuse Scleroderma, Dermatomyositis.

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Hi Beverly,

 

I have Dermatomyositis and I get the rash. I usually have it on my back and it itches very much. I also have it on my face and chest. I also see that my arms are red and I have the Grottons on my knees and hands. I sometimes have a hard time knowing what disease is bothering me because they overlap so much. The only thig I am sure of, is we each show sxs diferently. Its almost like we each own our own disease even though we all have cleroderma, we dont all have the same problems. Its the same with Myositis.

 

Hugs,

Patty


Hugs,

Patty

 

If Life hands you lemons, make lemonade.

 

Hashimoto's thyroiditis, Limited scleroderma, Dermatomyositis. Diastolic Dysfunction, dysphagia, Fibro, restless leg. Lupus is a maybe.

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