• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
miocean

Its Like a Switch Has Been Flicked!

6 posts in this topic

I have had a difficult time of it the past six months, suffering from food poisoning, going into acute renal failure twice, a hospital stay, another day of fluid infusions, suffering extreme fatigue and weakness, an increase of shortness of breath, chronic diarrhea, rapid weight loss, going to doctors and for tests including a kidney biopsy...I was beginning to get depressed and didn't want to read anything about scleroderma or post very much.

 

But today it was like a switch was flicked and I feel like me again. My labs are "stable" although my creatine is still high at 1.87. My urine is not quite as foamy. The changes in medications have reduced the diarrhea so for the first time in years I am not constantly in the bathroom. I started physical therapy and already feel a little stronger. I went to my chiropractor today and the receptionist commented on how good I looked. I went to my salon for my massage and nails and several people also commented on how good I looked. Someone asked me if I got new glasses, which I haven't, and said I looked different.These are people who see me every week.  I was able to go shopping tonight to a big store and walk around slowly without my oxygen.

 

I have no idea what tomorrow will bring. My pattern recently has been a good day followed by a day of needing to rest. I will gladly take the gift of today and hope for many more like it. I just had to share this will all of you!

 

miocean


ISN Artist

Share this post


Link to post
Share on other sites

Dear Miocean,

 

I'm really happy to read your post and am delighted to hear that you've improved so much and are feeling such a lot better. :woo-hoo:

 

I think that we never realise how bad we feel until we do start to feel better and I really hope that you will continue on this upward spiral and the good days will keep on coming!

 

Thanks very much for sharing this with us.

 

:hug-group:

 

Best wishes,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Hi Miocean,

 

I'm absolutely delighted to hear that you are on the upswing!  I also know that feeling of a switch being flipped. I have a hunch that it is because the inflamation has been quelled, for whatever reason.  It seems that whenever I'm feeling my worst, my inflammatory markers are also high.

 

About 40 years ago, I had been very ill for over a year and then finally had a major surgery that resolved the situation.  Three weeks after that, when most people would still be moping about and complaining about how long and slow recovery was, I opened my door one morning and was overwhelmed with how crystal clear and beautiful the whole world looked.  I was flooded with a sense of wellbeing, and then with the dawning realization that I had not felt that healthy in many years.

 

To think, that's how healthy people feel, all the time, without ever realizing how precious that feeling is!  I still cherish all the fleeting moments of energy, or a pain-free spell.  Maybe with chronic illness we learn to appreciate normal far more than any normal people do.

 

I'm very glad that you got to experience another burst of feel-good, and I hope you have many more as you continue to recover from this round.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

Share this post


Link to post
Share on other sites

That sounds wonderful news that you are feeling so much better! I think Shelley is right about the inflammatory markers because mine have at last become stable and I do feel so much better for it.

 

Do take care of yourself.

Buttons

Share this post


Link to post
Share on other sites

These posts made me think of my Dad and my brother.   In the early 1980's when Dad was about 66 or so my brother was involved in a light plane crash which injured him and quite a few of the rescuers go hurt too - long story!!

 

A couple of years later Dad had a health crisis which lead eventually to his demise.   In the meantime we spent as much time as we could together as family and I well remember Dad and Russ talking about having looked death in the eye.   It makes so much difference to your view of life to realise what a great world it can be out there if you can only see it.

 

Judyt

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now