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Sheryl

Sleep Apnea Results

34 posts in this topic

Sheryl,

 

You have a beautiful way with words. I hope you find the quality of your sleep much improved with sweet dreams all night long.

 

xoxo emmie

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Sheryl,

How did the sleep study go with the C-Pap? Are you using it at home now and has it made a difference in your sleep and daytime fatigue? I certainly hope so!

 

Please let us know how you're doing.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I am home from the sleep study. I used a C-Pap machine with first the pillow nose piece which was ok. I could hear the loud pushing of air into the nose piese and it sounded like someone breathing hard into my ears. About 2 am I awoke to the sound of loud tapping. I thought the technician was doing something so I waited about 5 minutes and it was really bothering me. So I asked out loud if they were doing something because the thing was so noisy. She came in to check and there was condensation inside the tubing and it was dripping every time I was breathing in or out a drop would fall into the tube. The humidity was set to high. So, they changed the tubing and I tried the regular nose piece mask for the rest of the night. I slept much better after that. You can't hear yourself breathing in that one. It is much quiter. Anyways, I guess the results will go to my doctor once again and they will call in an order for the machine so I should hear something from someone in the next two weeks. I liked having the humidifer for moisture as part of the system. I think the tech said the machine was set at 6 most of the night. Thanks for asking about me. My husband asked me how I slept last night. I said. pretty good the last half and was going to tell him what happened. He just said, yeah right. So, I poured myself a cup of coffee and walked away. Came on my computer and, here I sit. That's my exciting news for today. I almost hope he decides to sleep in another room like he at first said he planned to do if I got this contraption. I think when he said that he forgot that the only tv's we have in the house are the one in the bedroom that I will remain in and the one in the kitchen. Ha! I will let you know how the saga ends. ( Smiles ) ( Grins)


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hey Sheryl,

I am so sorry you are having such difficulties with your husband. As you may or may not have read, mine has been very supportive with this disease, however he can be quite the jerk about everything else. We are very fortunate to have really good health insurance thru his work. Talk about pills, I take 18 Rxs on a regular routine daily basis, not to mention the vitamins and supplements. He only has to pay a small portion of what our isnsurance costs, but if he retires, he's have to pay the full amount and we just can't afford that. He had planned to retire early at 55, but now he can't. He hasn't said anything to me about it being my fault, but I do feel guilty. Adn even though I only pay a small copay, when you go to the doctors sometimes twice a week and then for the rx's It really adds up fast. Last year my full retail price of my rx's were almost $20,000. I paid only about $2,000. I guess I have veered off of the subject, but I just wanted to let you know that you are not alone and DON"T let him bring you down!!When mine gets his tidy whities in a bunch , I just tell myself, this too shall pass and then I'll ask him if he's finished yet. :rolleyes: I have had a sleep study and I didn't have apnea, but they confirmed the restless leg syndrome and I take Requip for it (this was way before the commercials on tv about it) I did desaturate at night, but not enough to warrant oxygen. I should probably have another one as my last one was 5 years ago. One more thought before I go....a friend will bail you out of jail, but a TRUE friend will be sitting beside you saying my, that was fun!!!!! :P


Peace :)

Barbara aka relicmom1

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Sheryl,

It does sound like it was a good idea for you to do the CPap study under supervision rather than at home. I'm glad they were able to adjust it for you. Having a noise up against your face at night can be quite bothersome. If I don't have my cannula set just right, I get a low whistling noise that drives me nuts. Well, I hope once you get it home that it works wonders for you and if the hubby has to sleep in another room to deal with it - then that's HIS problem. You'd probably sleep better anyway from the sound of it.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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Hi Sheryl,

 

Thanks for the update. You know I have never had to do the sleep study business yet. I very rarely sleep as it is due to pain, etc. So I'm sure I would be awake the entire night just being in a strange place and being hooked up to all of the apparatus.

 

I hope your hubby sleeps in another room, then you can buy a new mattress paid for his bed made of nails. See how he sleeps then. lol (did I say that???) :)


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Ahh! A bed of nails. Which friend is going to bail me out and who is sitting beside me. I think I might definately need it. Hey, the last time Ron and I had this discussion he was afraid of me cutting his hair. He is keeping a low profile. He puts in his 2 cents and then meanders away. I saunter getting ready for the next query. I told him a long time ago. It was his job to earn the living and I would make his life worth living. We are both retired. Or at least he is. I still have a house to maintain and meals to prepare. A womens work is never done. I can also make his living quite misserable. (Grin) Enough of him. I will do what I need to do if I have to go back to work. Humm! Now, hairstyling (Snip/slash) or demolishing. Or Pharmacy as in drugs. What a way to go. Officer I was on a Sclero drunk and still am if you watch me walk that line. I don't know what happened to that man. You say he was my husband. OK! All for now. Thanks for all you concern. I am a surviver. 38 years worth in July. I guess we have learned to ignore things we can't control. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hi Sheryl,

 

my hubby also gets the tapping sound when condensation gets into the tube, he doesn't actually wake up from it, but I do!, and then I in turn wake him up and he either fixes it by holding the tube up so the condensation comes out, or just rips his mask off for the night if he is too dopey to deal with it.

 

It doesn't happen very often, but I just wanted you to know that it can happen occassionally.

 

Big hugs,

Irene

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Irene, I also was too tired to figure out what was happening. I surmised it might be that there could be condensation in the tubing. But, the tapping wasn't consistant. Of course I was awake and moving about and breathing erraticly. I am glad it happened there the first time so that I now know what to do.

Oh, anyone going for a sleep study make sure to ask about the humidity appliance that attaches to the machine. Insurance companies no longer automatically offer that part. Saves them a bunch of money. I was talking to the technician and saying I would really like the moisture because of asthma and breathing problems. She said if she doesn't word things properly on the orders she sends to be read I won't get the humidifier. So we talked about it and she let me use the moisture the entire night. Sooooooooo nice. My insurance company may try to get out of it. We shall see. I am off to visit my gastroenterologist this morning for my annual / bi-annual appointment. He will be happy. No major problems going on at the moment. It's all good. I hope. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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