Sheryl

Sleep Apnea Results

34 posts in this topic

Hi Sheryl and welcome back!

 

I'm sorry you have sleep apnea, but I bet you are glad to find something that may help. I know of a few people that use a C-PAP at night and they just love the results!

 

Best to you.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Well, my husband popped his cork. I let him rant and rave and tell me I was a hypocondriac. I just stood there. When he was done he walked away and about an hour later he came back to say that I could do what needed to be done. I just turned around and said, "you're absolutely right I will do what needs to be done". I can't believe it. I didn't let him get the best of me. I just let him rant and afterwards I had a feeling like I have to be strong and help myself. I can't depend on him to do whats right for me. Now, or in the future. I now know how Jennifer felt when her new husband said what he did. It takes awhile to push aside the heartfelt verbal slamming. I still can't believe he stood in front of me and said that I was fine and the doctors were wrong, there is nothing wrong with you. You just don't appear to be sick. I guess I will have to stop laughing things off and hiding my inhalers and most of my medicines. Oh, thats another complaint of his. I take too many medicines and that is what is most likely causing other ailments. Ha! That is why I tell him as little as possible. As long as I can handle this disease and others by myself I plan to continue to do so. No more ranting from me. Thanks though for reading and listening to me. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Oh Sheryl,

 

I am so sorry you are not getting support from your husband. That must be so very hard. Does he go with you to your doctor appts? I wonder if that would help, maybe he needs to hear it from someone other than you?

 

We're here for you.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Hi Pamela,

No my husband doesn't go with me to apointments. He went the first time for a confirmation that I did indeed have Scleroderma. He sat out in the lobby and didn't even bother to come in with me to meet the Doctor or hear what she had to say. I did try to get him to come in. He just decided to sit so that is why I don't give him any information unless he asks me point blank about something. I had to tell him about going back in for the overnite stay. I just had to time it right. I sure am glad I didn't get the packet of information until after I told him the price of my Dentist apt. When I worked I took care of things and paid for things and he was never the wiser about most things. Now, being retired he sees everything that comes in or out of the house. Oh Boy! He asked for a hair cut most bashfully last night. And even said, " you won't slit my throat will you". Guess he was a bit worried I hate some very hateful feelings. All is well for now. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Dear Sheryl,

YAY for you!!! I find shopping cures whatever LOL Sometimes I feel like I'm a hypo but I know inside I'm not. For those who poo-poo or lessen what I have, I've learned to not waste another breath on them because ya know what? They don't deserve to waste my prescious air! pfffffft

Just a thought B)

Take care~

Carrie


CarriePan :fairy:

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Sheryl,

 

Keep working on him. I would suggest calling your doctor ahead of time next visit and letting her know that your husband needs to hear what's happening. Then get him to go in on that visit and hear the spiel from the doctor. It might be a big eye opener for him.


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

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Sheryl,

I am really sorry to hear about your spouse and not getting the support you need. I hope it gets better. Mine support comes and goes. Yea, I think he should go to the Dr with you and let the Dr. start from scratch with what's going on with you, like Sweet mentioned.

Good luck.

Jennifer

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Sheryl,

 

I'm reading lots, but not posting much due to not feeling well. But I have to suggest that since you say your hubby doesn't miss a thing that comes in the house, maybe after you fill your dr. in on the situation with your hubby he/she would be willing to send a brief letter to the house summarizing your condition. Just a thought...

 

Good luck....sometimes it can be a challenge!

 

xoxo emmie

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Sheryl,

 

my hubby too had both his sleep studies done at home, and as you know his sleep apnea is severe. They just showed us how to hook him up and we took the machine hom and then we go back in after a few nights use and they load it into the computer to see what his pressure should be.

I am glad you are getting your sleep apnea sorted, it is such a serious thing and I hope the CPAP will greatly benefit you.

 

I am so sorry your hubby isn't understanding, maybe he is just really scared to face how ill you are. I do hope you can get some good support, and you know we are all behind you.

 

Big hugs,

Irene

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It is amazing how you can tell your friends anything and they don't condemn you or judge you when you explain things. But. you are afraid to tell things to the one you love because they are the first to condemn or just or use it against you in the future. Friends don't do that. Some would say its because they don't care as much in the first place. But, I would rather talk to my friends about anything than with family members. Strange how life works.

Thanks everyone for all your replies of love and understanding. Since we all take so many pills to rectify specific problems my husband doesn't have a clue what is going on. EXCEPT, I look normal so I must be OK

I am anxious to see if the quality of my sleep is improved. 3 years of terrible sleep patterns was enough to make me do something. I am starting to get excited. It might not take all the fatigue away, but it might help some. I'll let you all know which I should know by Wednesday morning. I'm so exicted. (song) Back to reading posts. Sheryl


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Sheryl,

 

You have a beautiful way with words. I hope you find the quality of your sleep much improved with sweet dreams all night long.

 

xoxo emmie

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Sheryl,

How did the sleep study go with the C-Pap? Are you using it at home now and has it made a difference in your sleep and daytime fatigue? I certainly hope so!

 

Please let us know how you're doing.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I am home from the sleep study. I used a C-Pap machine with first the pillow nose piece which was ok. I could hear the loud pushing of air into the nose piese and it sounded like someone breathing hard into my ears. About 2 am I awoke to the sound of loud tapping. I thought the technician was doing something so I waited about 5 minutes and it was really bothering me. So I asked out loud if they were doing something because the thing was so noisy. She came in to check and there was condensation inside the tubing and it was dripping every time I was breathing in or out a drop would fall into the tube. The humidity was set to high. So, they changed the tubing and I tried the regular nose piece mask for the rest of the night. I slept much better after that. You can't hear yourself breathing in that one. It is much quiter. Anyways, I guess the results will go to my doctor once again and they will call in an order for the machine so I should hear something from someone in the next two weeks. I liked having the humidifer for moisture as part of the system. I think the tech said the machine was set at 6 most of the night. Thanks for asking about me. My husband asked me how I slept last night. I said. pretty good the last half and was going to tell him what happened. He just said, yeah right. So, I poured myself a cup of coffee and walked away. Came on my computer and, here I sit. That's my exciting news for today. I almost hope he decides to sleep in another room like he at first said he planned to do if I got this contraption. I think when he said that he forgot that the only tv's we have in the house are the one in the bedroom that I will remain in and the one in the kitchen. Ha! I will let you know how the saga ends. ( Smiles ) ( Grins)


Strength and Warmth,

Sheryl

 

Sheryl Doom

ISN Support Specialist

(Retired) ISN Chat Moderator

International Scleroderma Network (ISN)

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Hey Sheryl,

I am so sorry you are having such difficulties with your husband. As you may or may not have read, mine has been very supportive with this disease, however he can be quite the jerk about everything else. We are very fortunate to have really good health insurance thru his work. Talk about pills, I take 18 Rxs on a regular routine daily basis, not to mention the vitamins and supplements. He only has to pay a small portion of what our isnsurance costs, but if he retires, he's have to pay the full amount and we just can't afford that. He had planned to retire early at 55, but now he can't. He hasn't said anything to me about it being my fault, but I do feel guilty. Adn even though I only pay a small copay, when you go to the doctors sometimes twice a week and then for the rx's It really adds up fast. Last year my full retail price of my rx's were almost $20,000. I paid only about $2,000. I guess I have veered off of the subject, but I just wanted to let you know that you are not alone and DON"T let him bring you down!!When mine gets his tidy whities in a bunch , I just tell myself, this too shall pass and then I'll ask him if he's finished yet. :rolleyes: I have had a sleep study and I didn't have apnea, but they confirmed the restless leg syndrome and I take Requip for it (this was way before the commercials on tv about it) I did desaturate at night, but not enough to warrant oxygen. I should probably have another one as my last one was 5 years ago. One more thought before I go....a friend will bail you out of jail, but a TRUE friend will be sitting beside you saying my, that was fun!!!!! :P


Peace :)

Barbara aka relicmom1

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Sheryl,

It does sound like it was a good idea for you to do the CPap study under supervision rather than at home. I'm glad they were able to adjust it for you. Having a noise up against your face at night can be quite bothersome. If I don't have my cannula set just right, I get a low whistling noise that drives me nuts. Well, I hope once you get it home that it works wonders for you and if the hubby has to sleep in another room to deal with it - then that's HIS problem. You'd probably sleep better anyway from the sound of it.

 

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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