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beedee

Is it coming back?

4 posts in this topic

Hi There, I haven't been on these boards for several years. I struggled with morphea that was spreading somewhat aggressively from April 2007 to February 2008. After various ointments, light therapy, steroid injections and finally methotrexate, it burned out and aside from my scars, wasn't really something that I would think about daily anymore. 

 

The morphea started on my chest as a bump under the skin, which grew to the size of a plum. The area looked faintly bruised as well. Although it remained on the left side of my body, it eventually spread to my upper arm, wrist, palm and ring finger. The spots on my hand and chest are still quite noticeable and hard. 

 

Earlier this weekend, I noticed a bump (about the size of a large coin) under the skin on my right forearm, close to my elbow. Although I am quite pale, my forearms are very freckly, and I don't see any discolouration at the surface. The bump feels exactly as I remember the bump on my chest feeling when the morphea started years ago. 

 

I will likely get this checked out in a month or so if it persists, as I am traveling for work. I no longer see my dermatologist as I have moved to a different part of the country. 

 

I've been doing some research again.  is it possible for morphea to return, and could this be morphea even without the bruising or pigment changes at the surface? Any thoughts and experiences that you might have would be most helpful. Thanks!

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Hi Beedee,

 

How nice to hear from you again, although I'm sorry to hear that you have new worries that your morphea may have resurfaced.

 

It is possible for additional morphea patches to form, but I would be concerned about any sort of lump and would recommend that you have it checked out sooner rather than later. Perhaps you could see your primary doctor first, with a view to a referral to another dermatologist? I've included our link to Scleroderma specialists.

 

Please do post again and let us have further updates.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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Hi Beedee,

 

I agree with Jo.  It's possible it might be morphea again, as it is possible for it to reactivate at any time. However, it could also be anything else.

 

Even if it is morphea, its better to begin treatment asap because it is far easier to prevent progression than it is to clear up existing damage. 

 

For others reading this, I'd like to point out that with any type of scleroderma, it is never okay for us to simply assume that a new symptom or reactivation is "just" scleroderma.  We are just as vulnerable -- if not more -- to everything that anyone else can get.  So every symptom or significant worsening should be evaluated from scratch on its own merits, with the initial assumption being that it is *not* scleroderma so that the logic train to diagnosis does not get derailed.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hello Beedee

 

Welcome back!

 

Scleroderma, whether localised or systemic (I have both) can wax and wane but as already said, don't assume.

 

Take care and keep posting.


Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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