dimarzio

Washing your Hands

6 posts in this topic

Two quick questions:

 

1.  It doesn't matter whether I use cold, warm or hot water, any contact between my hands and water (even a couple of raindrops) sets off my Raynaud's.  Whilst I avoid water as much as possible, I know that every time I need the toilet it will be a difficult issues.  Does anyone else suffer Raynaud's this bad or have a coping strategy?

 

2.  Just started taking Ramipril.  Has anyone else found it of help?  How long did it take to have any effect?

 

Thanks

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Hi Dimarzio,

 

As it happens, either cold or hot water can set off attacks of Raynaud's.  So, when it's an option, try for warm water (even in bathing). And then buy a big supply of packaged hand wipes, and keep them handy in the car, pockets, purses, bathroom...everywhere.

 

It is always worthwhile to avoid an attack of Raynaud's. See Raynaud's Prevention for more tips!

 

I don't have any particular experience with that blood pressure medication.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Dimarzio,

 

Sorry to hear that your attacks of Raynaud's are so bad.

 

Thankfully, although I do suffer with Raynaud's, I've not experienced such extreme attacks as you describe.

 

Our Raynaud's Main Menu does give lots of information about this unpleasant disease.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Thanks for replying - I get the same from hand wipes as I do from water, so that isn't helping me I'm afraid.

 

We are talking about the same wipes are we? Wet wipes or those things you use to wipe babies bottoms with.

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Hi Dimarzio,

 

The only other thing I can suggest are those antiseptic gels you can use on your hands without water. 

 

I have used those a lot when out and about and can't wash my hands after touching supermarket trollies etc.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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