gillesley

Dent in forehead the size of my index finger for no reason

3 posts in this topic

I have been seeing a Dermatologist due to lesions on palms and legs after testing low positive once and negative once for Scleroderma.  After several attempts to medicate as per the Dermatologist, I researched and found a picture of lichen planus that looked like the lesions on my palms. After several requests for her to do biopsies, she finally did them on both palms, and legs.  They both ended up being Lichen Planus. 

 

I requested a consult with a Gastroenterologist for the second opinion on the severe swelling in my stomach and told him that it was diagnosed as IBS.  He did many blood tests and I ended up positive for Scleroderma again. 

 

After a biopsy of my liver and small intestine, he said that I had fatty liver disease and mild systemic disease.  When I informed the dermatologist and showed her the dent that had appeared on my forehead, she would not take a biopsy and told me that it was probably due to water retention.  I have had it for weeks now, and occasionally I faintly see and feel a "V" shaped indentation in the middle of my forehead. Any ideas?

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Hi Gillesley,

 

Welcome to these forums!

 

I can understand your concern over the positive blood test results for scleroderma. However, the symptoms you describe could apply to many other health problems, apart from scleroderma. I would point out that blood tests on their own are by no means conclusive as a diagnostic tool and the clinical signs of the disease are much more relevant.

 

We do recommend that our members consult a listed scleroderma expert, as this complex disease does require specialist knowledge and although we can provide basic support and general information, we are not doctors and are unable to offer any sort of diagnosis for scleroderma. (I do have a now out of date first aid certificate, which is quite handy should I come across someone with a broken leg, but that is the sole extent of my medical expertise! :wink:)

 

I have included a link to our medical page on En Coup de Sabre to give you some more information.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Gillesley,

 

Welcome to Sclero Forums. Many scleroderma antibodies are positive in morphea, and the National Organization of Rare Diseases lists alternate names for lichen planus such as guttate morphea and guttate scleroderma. So, perhaps your antibodies go along with the lichen planus?

 

The way to check it out would be to see a scleroderma expert.  In any event, it's important to know that localized forms of scleroderma can occur with many antibodies, and those types are distinctly different from systemic scleroderma. So there is a projected normal life span with morphea, guttate, linear, en coup forms, etc. and they do not automatically progress to systemic, either, in fact, it is very rare for anyone to have both limited and systemic.

 

Our in-house exception to that rule is Amanda, of course, who has both. It's possible your illness might be as bad as it's ever going to get. It's also possible that you might be developing another lesion of some sort on your forehead.  But I agree with your dermatologist, as I'd never want to have my forehead biopsied, unless it looked like cancer or there was no other choice, because it might leave a scar or make it more visible or prominent.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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