barefut

Just Complaining

9 posts in this topic

Man! I have been SO tired today! It feels like I never slept even though I got my usual 6 1/2 hours and lastnight it was even uninterrupted sleep! I closed my eyes and woke up and it was daylight. That never happens.

 

So WHY am I so sluggish? Feels like my head is thick and heavy and I can't get a thought through it. I've been feeling a little bit more fatigued and sluggish since our one REAL day of warm spring weather last Thursday. I did a little bit of yard work, felt really good about it and was excited to continue and see more progress but I've only felt worse each day since.

 

I think it may be "Aunt Flow" messing with me again. She arrived lastnight about dinner time. Anyway.......just thinking out loud.

 

Well day is almost done, didn't think I'd make it. Only another hour or so until I can put head to pillow.

 

Have a good night all,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hope your feeling much better today. if it doesn't let up call the doctor. sam


Sam

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Barefut,

I am so sorry you are feeling so fatigued. Fatigue is one of my worst symptons. I don't know how you keep on plugging. I just have one child and he is almost 15, plus my husband is awesome. I hope that you are feeling better by the time you get this email. If not, call your doctor.

Nan

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Hey Barefut,

 

Hope you can regain some energy soon. I for one don't sleep well and I find I almost do better on a night when I don't get much sleep versus the night when I actually get a solid 7 hours. I had a good night sleep last night and today I feel out of it. Not sure what the reasoning is behind that, but I can certainly relate to your issue!


Your Friend,

 

Gi Gi

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hi everyone,

Fatigue is probably my biggest symptom. I think it's kind of weird that the specialist I saw on Monday said I don't really have enough symptoms to treat; why isn't fatigue enough? I can't help but think that when a healthy person hears someone say they're tired they think it's just plain 'ol "tired." I've tried to explain to my husband a milliion times that this is not just "tired." This is totally different. Like several of you have said, it's not just "sleep" tired--it's like my whole body needs to just stop. The only thing that helps me is lying down. I get up in the morning, get my daughter off to preschool, get back and shower and head off to teach. By the time I'm done teaching, pick her up, and come back home, the only thing I can do for the rest of the night is lay on the couch. I can't even climb the stairs at work anymore without intense muscle fatigue in my legs and hips. It's causing problems at home with my husband, and while he says he "understands" and even apologized once for ripping on me for being lazy, I can tell he's impatient and often angry. Things are piling up around that house that need to get done and yet some days I don't have the energy to even put a new roll of toilet paper on the holder in the bathroom. Some days are definitely better than others--I have days where I feel relatively fine. It's just that it hits with no warning and that makes it harder to deal with. Dr. M is dictating a letter back to my primary care physician about my "care" and if he doesn't mention some kind of medication, I'm going to press her for to consider giving me something like Plaquenil, or maybe even an anti-depressant. She wanted to put me on Plaquenil right away anyway, but that's because she was pretty sure I was in the early stages of scleroderma. I just know that I need something to help me with this fatigue.

 

Sorry to complain...sometimes my positive attitude gets up and leaves me for a while. <_<

 

Hope you're all having a good day,

ErinF

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Dear Erin~

Do you think the drugs will help? I'm only on Prilosec right now and really don't take anything for pain. I do take an occasional benadryl to sleep. I wonder if that would help me. I'm tired almost all the time myself. I have to keep going or I will just crash and then never want to get up. Kids to run here and there, meals, hubby off to work...cuz I'm not going to work LOL anyway, I feel we have the right to be cranky, especially when others makes it that much harder for us to function. I have 3 children and hubby yes, makes 4! I do tell hubby that if the dishes bothers him then he could do them :D :lol: I just don't think anyone understands the tole this stupid disease has on us. I'm sure others has it worse than I do, but I shouldn't be this tired and always feeling some sort of pain. I wish it would just stop. My Dad always says, you have to feel the pain to know you are alive. HA! I guess the alternative is worse, huh?

Ya know, after I turned 40, I realized it's getting easier to say what ever you want and not worry about it....I figure, senility will set in eventually and then what would I care anyway? I won't remember LOL Take good care of yourself,

hugs,

Carrie


CarriePan :fairy:

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Dear Barefut~

Can you tell me when you take the prilosec and do you feel any difference taking it? The dr wants me to take 2x/day. Does it really make a difference? She found tons of polyps in my stomach! How did they get there???? And a hiatal hernia...I was like what?!?!?! I thought aging was going to be difficult LOL

Hope you're feeling better~

Carrie


CarriePan :fairy:

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Hi Carrie,

I guess I'd like to think that a drug like Plaquenil would at least halt whatever disease is going on inside me, and maybe that would help with the fatigue. Probably just wishful thinking! :lol: I'm just anxious to hear back from my primary care physician about what she heard from the specialist--like the blood tests and x-rays they took--how did they turn out? I hate this waiting part. Blech. Since I was at a teaching and research hospital, I'm worried that it's going to take FOREVER to get the results. Well, I am having a burst of energy right about now so I should try to get some laundry done before I head out the door. Yipppee! What fun! :P

 

Take care everyone,

ErinF

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Well Hi Guys, (gals :) )

 

The day after this post I went to bed at 8:30 right after my kids fell asleep. It was still light outside! I NEVER do that! It felt good. I slept good. Must have gotten about 9 hours sleep and did much better the next day.

 

I have also been having wierd, vivid dreams and I've woken up with chapped lips and my (almost) 5 year old has been snoring and having the chapped lips in the morning too. We both have seasonal allergies so we're probably breathing through our mouths and I may not be getting enough 02 when I'm sleeping, maybe that's partly why I've been SO tired.

 

Hi Carrie,

 

Yes, Prilosec has been very, very good to me.

I take the generic "Omeprazole" now. I could not live without it. The reflux and heartburn would be unbearable.

 

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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