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fargocowgirl

Edema and Anemia

6 posts in this topic

Hi. I have extreme pitting edema. My skin is red and sore. The ER doctor said it is not cellulitis but my skin is "angry" because of the swelling.  I had and iron infusion a week ago for my anemia. How long before I see some relief from the edema?

Thank you

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Hi Fargocowgirl,

 

Welcome to these forums!

 

I'm sorry to hear that you're suffering with pitted edema, which must be very painful and unpleasant.

 

Unfortunately, it can be a symptom of scleroderma, although it's also a common symptom in many other illnesses. I've included links to a couple of other threads "Legs swelling with pitted edema" and "Edema, how long did it take?" which I hope you'll find helpful and informative.

 

I would suggest that if it hasn't improved within the next week, that perhaps you should make an appointment to speak to your primary doctor about it.

 

Kind regards,


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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I had 5 iron infusions over 5 weeks and was told it would take about 2 weeks after the first one to see a difference. My levels have come up but they are still low. I don't know about the edema. Have you seen a cardiologist? Compression stockings or socks and keeping your legs elevated can help.

 

Just out of curiosity, does your doctor think the edema and your iron levels are related?

 

I hope you get some answers and relief soon,

 

miocean 


ISN Artist

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Hi Fargocowgirl,

 

Welcome to Sclero Forums!  Has your edema settled down, yet?  I hope you are feeling a bit better, soon.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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mio,

 

Wow!! 5 infusions in as many weeks, I am lucky to have about 2 a year.   Just lately I have had a real run of low Haemoglobin  and at the beginning of March had an infusion then 2 days later had a massive bleed and needed 2 units of red cells.   Still haven't seen much improvement and see the Gastro tomorrow but you can bet your bottom dollar she doesn't suggest another infusion or transfusion.

 

My Anaemia seems to have been diagnosed as caused by Angiodysplasia for which there is no effective treatment.really.   Changing meds to try to eliminate those that can cause internal bleeds seems to be the only course to try.

 

When you talk about edema do you mean Oedema (our english is different from yours obviously) which is swelling of the tissues.

 

Best wishes

judyt

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There are several possible causes of pitted edema.  I would highly recommend that you see your primary doctor to try to get to the root cause of your edema and to provide some relief.  When I had it a couple of months ago my doctor prescribed diuretics that gave me quick and lasting relief. 

 

Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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