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26 posts in this topic

Hello Peter


Oh boy, you're sure going for it! Never heard of what you have which is quite a feat. Antibiotics can be awful drugs, rather, the effects can be. In 2012 I had cellulitis 3 times in 5 months, needing IV antibiotics twice. I ended up in hospital for about 5 days with an acute kidney injury and when home, spent two weeks in bed. The first week I developed colitis and oh my giddy aunt, was that awful!


When it comes to treatment my husband and I consider quality over quantity and make a decision based on that alone. Who want 10 miserable years instead of 5 mediocre ones, no one but the doctor!


Hope it works out and sorry pain has joined the party. The best thing to do, I think anyways, is to accept that it's there to stay and all you can do is manage it. Sounds obvious I know but had I accepted the pain and its side effect of being unable to walk, I'd have saved myself lots of bother especially as I've ended up in a wheelchair anyways! Oh and if you need medication to help, I say take it but less is definitely more.


Take care and keep us posted.

Amanda Thorpe

ISN Sclero Forums Senior Support Specialist

ISN Video Presentations Manager

ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist

International Scleroderma Network (ISN)

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