Loss of muscle

3 posts in this topic

For 6 plus months I have had very noticeable muscle loss on one side of my face, my mouth sags down a lot, my nose and it's more difficult to smile on that side.

Has anyone experienced this with scleroderma? Interested in hearing similar issues.

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Hi Ralph,


Welcome to these forums and I'm sorry to hear that you've been experiencing muscle loss on your face.


There are certain conditions with scleroderma which can affect the face such as Linear scleroderma and Parry-Rombergs Syndrome. However, muscle loss can be attributed to other conditions as well and as I have no medical training apart from a now out of date first aid certificate, I would suggest that perhaps a further examination by your doctor would be in order.


Have you been diagnosed with scleroderma? We do recommend that our members consult a listed scleroderma expert if this complex disease is a definite possibility, as it does require specialist knowledge and expertise.


Kind regards,

Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Ralph,


Your symptoms would definitely be something to see your doctor about. Usually facial sagging is due to other things, such as a stroke or Bell's palsy.  If it was scleroderma, such as en coup de sabre, the onset is typically a slow and progressive development.


In any event, please see your doctor, and let us know what you find out.



Warm Hugs,


Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099


The most important thing in the world to know about scleroderma is sclero.org.

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