Joelf Posted September 14, 2016 Hi Pam, Welcome to these forums! I'm sorry to hear that you're suffering with unpleasant symptoms and I hope that the bowel incontinence doesn't become too much of a problem for you. We do recommend that our members, if possible, consult a listed scleroderma expert, as this complex disease does require specialised knowledge and expertise. Kind regards, Quote Jo Frowde ISN Board Member ISN Secretary of the Board ISN Assistant Webmaster SD World Webmaster ISN Sclero Forums Manager ISN News Manager ISN Hotline Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
Buttons Posted October 8, 2016 I have bowel issues & had an SNS fitted 6 years ago! It has helped by giving me those extra seconds to get to the toilet but I do find now that that I have an issue with leakage after passing stools which I find a bit difficult at times. Seems to be when I have days when I pass stools at least 4-5 times a day but then the day after may not go at all! I was told mine was due to nerve damage. The SNS helps I feel but not totally. I do use Imodium on bad days but only in small amounts because then it can swing the other way. Buttons Quote Share this post Link to post Share on other sites
victordan Posted October 15, 2018 Hello! I know this post is a bit old now but, did you take any medical examination for stool, urine, and blood? Bowel incontinence is a severe form of constipation and there are many causes. I`m saying this because I had to deal with incontinence and I was usually constipated. Also, I took stool examination and it turned out that I had 2 viruses in my intestines: Helico pylori and Giardia. These two combined, cause incontinence, slow intestinal motility and sometimes pain. I think sometimes you need to have some examinations just to make sure these viruses / bacteria / infections are not there. Quote Share this post Link to post Share on other sites
Joelf Posted October 15, 2018 Hi Victordan, Welcome to these forums! Thank you for posting your experience with H pylori (bacterial infection) and Giardia, a rather unpleasant parasite. With the bowel symptoms you describe, we do advise that our members consult their gastroenterologist, in order to eliminate the possibility of bacterial infections, as well as it being a complication of scleroderma, for which they would need to consult a listed scleroderma expert. Kind regards, Quote Jo Frowde ISN Board Member ISN Secretary of the Board ISN Assistant Webmaster SD World Webmaster ISN Sclero Forums Manager ISN News Manager ISN Hotline Support Specialist International Scleroderma Network (ISN) Share this post Link to post Share on other sites
