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Paulo

Help, How to get rid of fibrin?

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Hello from Brazil!

My father has limited scleroderma, and it is getting worse...he has some ulcerations, but the biggest problem is a ulcer on his foot, which hurts a lot and he cannot walk...he is in pain 24/7...the ulcer was not getting healed, and then he started using the VAC System for 2 weeks now...I see that the ulceration looks better, but the fibrin is too thick, making it hard to get healed...is there any kind of medication or anything to get rid of fibrin?

Thanks a lot!

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Hello Paulo,

 

Welcome to Sclero Forums! 

 

I'm sorry your father has scleroderma, and a nonhealing ulcer. Please have him call or see his doctor for further wound care instructions, if there is anything at all that seems to be impairing the healing. It is not a "do it yourself" job because the wrong approach, even if very well-meaning, can make ulcers worse, and every situation is different.

 

It's normal to have regular doctor appointments to treat the wound, until it is entirely healed.

 

Please let us know what you find out, and give our best wishes to your father, too.

 

:hug-group:


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Shelley!

 

Thanks for your answer.

 

I agree with your thought, he goes to a wound care but they don't know what else could help him, not even the doctors, that's why I was asking about how to get rid of fibrin, because his fibrin gets really thick and not possible to clean it. He also feels much more pain when there is fibrin. It is complicated to deal with this condition, when nobody here in Brazil seems to have any idea of what to do.

 

My father has scleroderma for more than 15 years, then, he knows that fibrin makes the ulceration much harder to heal in his case.

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Hi Paulo,

 

Welcome to these forums!

 

I'm sorry to hear that your father is suffering with painful ulcers; very unpleasant and especially on his foot which must make getting around so difficult for him.

 

I can understand how hard it is to get helpful treatment, when the doctors have very little knowledge about scleroderma. As Shelley has advised, do it yourself remedies are not usually the answer and can make things worse. We have a medical page on Treatments for Digital Ulcers, which I hope may give you some ideas to help your father and alleviate some of the pain and discomfort with which he's suffering.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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I had a relative who was disabled by non healing ulcers and suggested trying Manuka honey.

 

She said I didn't know what I was talking about.

 

6 months later, her hospital consultant treated her ulcers with Manuka honey and her ulcers began to improve.

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