barefut

Vocal Cord Damage From Reflux?

14 posts in this topic

Does anyone else experience chronic hoarsness or loss of voice?

 

It is SO annoynig to be on the phone or in face to face conversation with someone and have to be constantly clearing my throat or coughing to try to get my voice back! People think I'm sick and take a few steps back.

 

I'm also bummed to not be able to read aloud to my kids without a lot of annoying throat clearing. It makes it a not very pleasant experience.

 

Is there any info out there on vocal cord damage from reflux?

 

Thanks,

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hi Barefut

 

I am like you, constantly clearing my throat. Also my voice is a bit hoarse.

I am seeing my rheumatologist on Friday and will put it on my list of things to ask him.

Will let you know what he says.

 

Helen

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Barefut,

My brother severely damage his vocal cords due to reflux to where he wasn't able to talk. He had surgery which fixed things, but now has really got to concentrate on prevention of reflux so it won't happen again.

Big Hugs,

Janey


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

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I was just reading an article last night that was discussing some of the lesser known symptoms of scleroderma, and one is vocal chord damage--damage NOT caused by reflux but by fibrotic tissue in the vocal chords. Definitely mention this to your rheumatologist so he/she can check it out and make sure it's identified properly.

 

Good luck!

ErinF

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OH MY ######! NO WAY ERIN!

 

I printed out probably the exact article lastnight and was sitting here with it in my lap while I was reading your reply! TOOOOOO Creepy weird!

 

Yes, "Less well recognized manifestations of Systemic Sclerosis... Thyroid involvement, Impotence, Testicular fibrosis, Bladder invovlement, Carpal tunnel, Trigeminal nerve palsy (and these last two which I think may affect me,) Periodontal ligament reabsorption and vocal cord infiltration"

 

I believe my vocal cord involvement is not due to acid reflux because Omeprazole controls the acid and I very rarely experience reflux anymore. I saw mention of thyroid involvement causing hoarsness and deeper voice as well.

 

Can't wait to get it sorted out and HOPEFULLY get it treated if it CAN be treated! I know there are a few people who wouldn't be sorry to hear my voice go but I'M not one of them! :lol:

 

I'll have article in hand at my May 1 appt with rheumy. So glad I found it.

 

Thanks for allyour replies everyone!

Barefut


Take care,

Barefut

 

Serena Justis

ISN Blogger

International Scleroderma Network (ISN)

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Hey Barefut,

Great minds think alike! :P I have had a hoarse voice off and on for years, which the rheumatologist in Madison says is probably the myasthenia gravis, but I'm still so freaked out about scleroderma that last night I googled hoarseness and scleroderma and found that article.

 

I think I'm googling myself to death!! I need a computer intervention!

 

ErinF

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The medical term for this is dysphonia (hoarseness, loss of voice). See our section on it in Esophageal Involvement: Dysphonia.

 

And Erin, you're not googling yourself to death, you are simply researching things for the first time that you never had any reason to learn about before.

 

It is too bad that it is such illnesses that makes us research and learn. But at least we have each other!


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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Hi Barefut ,

 

You can add Gareth to the list. In fact, we had this same discussion on the forum when I asked about it a couple of months ago. At that time, I didn't know why some days he had a voice and other days he didn't. His reflux is under control, too, so I know that isn't the problem. The ENT guys said the next time the gastro doctor puts him under, he will go in and check his vocal chords. Gareth gets so upset in church because he can't sing anymore....that is heartbreaking to me. He tries to sing and, then, the voice goes completely and he 'shuts' down on me. I tell him to whisper his song but he wants so much to sing out loud like everyone else....like he use to do.

 

Take care, Everyone.

Margaret

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I have the same problem between dryness and the hoarse voice, I have had this as long as I can remember. I went for a job interview when I was 23 years old and the Dentist that was interviewing me asked me, what's wrong with your voice, do you alway's talk like that? I couln't beleive it, and I have never forgotten that. I began to think well, this is normal this is just the way I talk. I definately know what your talking about.

 

Jackie S.

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I've been hoarse and throat-clearing for a while but I'm a smoker with asthma and reflux, so no big surprise. But when mom died, and ever since, (about 3 weeks now) I've been croaking like a frog. I keep losing my voice, or just not having a voice to start with. My husband's been talking for me, when I can't. I'm soooo glad you brought up this topic Barefut, there are ideas in this post I hadn't thought of. I didn't know Sclero could affect the vocal cords. Didn't think about the thyroid either.

My first thought was the Blood pressure meds I take for Raynauds. I remember reading that they can cause a side effect of hoarseness & cough - both of which I'm having more trouble with since starting that med. With winter on its way out, it's easier keeping my hands warm so I called my rheumatologist yesterday to ask if I can stop taking the BP med. He said yes, so that's the first thing I'm going to try to get rid of this hoarseness. If that doesn't work, then I guess I'll have to see a doctor about it because it could be the Sclero. fibrosis, or reflux, or smoking, or thyroid (there's a nodule on my thyroid).....

Karen

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I have acid reflux and when it is bad, I develop a cough. I initially thought it was when I was tired that I developed a cough as it tended to be a night but the doctor said the acid reflux is aggrevating the vocal cords. I am trying to get my acid reflux under control but it is hard going from a "cast iron" stomach where I could eat everything and anything to now having to avoid certain foods. So, somedays, I am not as good as I should be and pay for it by the end of the day. Gidget

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Hi barefut and Everybody,

Over the past year, or so... I've had this problem too. My doctors have kept the ol' eye on my goiter through this. About a month ago, my rheumatologist ordered a thyroid ultrasound... the results: multi-nodular gland, though my rheumatologist believes it to be benign. I've had a lot of trouble swallowing and the hoarseness... well, count me in, too <_< .

Hopefully, we can all get some answers/satisfaction eventually.

Hugs, Susie


Special Hugs,

 

Susie Kraft

ISN Support Specialist

ISN Chat Host

International Scleroderma Network (ISN)

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