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Hi everyone!

 

I recently discovered this forum and have spent some time looking through all of the posts. Really great to see the support amongst everyone. With that being said, I have a few concerns about my condition and was hoping some one might be able to share some insights.

 

I have a severely dark indented scar on the left side of my forehead (it has developed over a few years). I saw a dermatologist last year who diagnosed it as Linear Morphea and prescribed me ProTopic (Tacrolimus 0.1%) and have been using daily for about 6 months.

 

I was wondering if anyone has had this same condition (whether it be on the forehead or another part of the body) and has experience using Tacrolimus 0.1%. How did the treatment go and what kind of results did you see?

 

I have never met anyone who has had anything remotely close to what I have and I was hoping someone with a similar experience might see this.

 

All the best!

 

J

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Hi Judjud,

 

Welcome to these forums!

 

I'm sorry to hear that you've been diagnosed with linear morphea/ en coup de sabre.

 

With regard to your query about tacrolimus, we do have an expired article by the FDA Public Health Advisory on our Morphea Treatment medical page, which has voiced concerns about a potential cancer risk from use of Elidel (pimecrolimus) and Protopic (tacrolimus). I've also found information about Protopic (tacrolimus), which does include various warnings about the medication. It is a topical macrolide immunosuppressant.

 

UVA1 phototherapy is now the recommended first-line treatment for morphea (but not whilst taking tacrolimus, for obvious reasons.) We do recommend that if possible, our members consult a listed scleroderma expert/dermatologist, as this bizarre and unusual disease does require specialist knowledge and expertise.

 

Thankfully, I don't suffer with linear scleroderma/ en coup de sabre, so can't give you any advice from my own experience. However, I've found a couple of threads about it, which I hope you'll find helpful and informative.

 

Kind regards,


Jo Frowde

ISN Board Member

ISN Secretary of the Board

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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