• Announcements

    • Joelf

      Upgraded Sclero Forums!   05/18/2017

      Welcome to the Upgraded and Redesigned Sclero Forums!!   Our Forums are even better and more up to date than before.   Happy Posting to all our Members!!
kelowna52

New Rhemie And Very Frustrated.

7 posts in this topic

I went to see my new rheumatologist yesterday about the results of my blood work that I had done 3 weeks prior. I went into his office thinking that the bloodwork had to show something, considering I was diagnosed about 3 years a go. Well, he comes into the room, looks over everthing for a few minutes and then says everything is negative, I can't find anything wrong with you. I was stunned. He said why are you on all of these meds, I was like what! I feel awfull, that's why I'm on all of these meds. I went through so much testing at UCLA in LA, and all of my doctors there agreed, I have Scleroderma. I mean what do you say to this new rheumatologist? I told him everything that was going on with me and he said well you can come and see me again in 3 month's and we'll see how your doing then. Plus he wouldn't renew my scrips. The only reason I decided to switch Rheumies is because I didn't want to drive to Seattle for everthing, which is 1 1/2 hours away, at least. I really like my rheumatologist in Seattle, my rheumatologist in LA referred me to him and he prescribed almost all of my meds. Now I don't know what to do, my sister is an RN in Canada, and she thinks I should definately go back to my Seattle rheumatologist. What do you all think I should do?

 

Jackie S.

Share this post


Link to post
Share on other sites

Wow!

 

Does the "new" rheumy have all of your chart notes from LA? If not I would make that happen if you decide to stick with him. But what I would do is continue with the 1.5 hour drive to Seattle to the rheumatologist you like. I have a 3 hour drive one way, and to me that's no big deal to see someone that I know is one of the best! I would call one or both of your old rheumies and get those meds filled!

 

Sorry you have to go through this. :(


Warm and gentle hugs,

 

Pamela

ISN Support Specialist

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

I would continue to see the other rheumatologist in Seattle. They know you and that is what you need. Aparenlty he didn't read your medical records forhand. So that is what I would do. I hate starting to see a new doctor. Sam


Sam

Share this post


Link to post
Share on other sites

You poor thing! I think she should go back to your old rheumatologist.

Nan

Share this post


Link to post
Share on other sites

Thanks Pamela for getting back to me. I called the Rheumies office I went to yesterday because they didn't give back all of my paperwork from all of my tests. I spoke to his nurse and asked her how on earth this bloodwork could be all negative and she said oh! that happens quite often, she said I have seen it go both ways from Neg. to Positive and vise a versa. So I don't know, but as far as my meds, I really don't understand that. All of my prescriptions have my rheumatologist's name from Seattle on them. I used to drive 2 1/2 hours each way in California, to my rheumatologist there. This doctor, I have seen in Seattle was referred to me by my rheumatologist in L.A. I really like the doctor in Seattle, I'm just tired of the driving, but I guess I'll just do it. It's not so bad driving for appointment's every three month's, it's when you have to have tests done or see other doctor's down there that he wants you to see. Anyway I know alot of you have to drive a fair distance so I guess I will probably go back to Seattle. Thanks again Pamela.

 

Jackie S.

Share this post


Link to post
Share on other sites

Thanks Nan and Sam, I beleive you are all right. I think I will definately go back to my doctor. in Seattle. Thanks again.

 

Jackie S.

Share this post


Link to post
Share on other sites

Jackie,

I have nothing more to add except for a (((((((((((HUG)))))))))))). I can imagine your frustration with the new guy. So since it's frustration you don't need, go back to Seattle. Some things are just worth the time and effort.

Big Hugs,


Janey Willis

ISN Support Specialist

(Retired) ISN Assistant Webmaster

(Retired) ISN News Director

(Retired) ISN Technical Writer for Training Manuals

International Scleroderma Network (ISN)

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now