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JEANNIE

Recent diagnosed

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Hello everyone.  I recently had labs done. My SCL 70 antibody test was positive.  My level was 5.8. I tested positive for ANA.  My RH  factor was 38.  I'm waiting for additional results ordered by my rheumatologist. There's not a doctor In Kentucky specializing in scleroderma.  In fact my doctor doesn't seem to be concerned.  Any insight or advice would be appreciated. 

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Hi Jeannie,

 

Welcome to these forums!

 

Whilst I can understand your concern over your blood test results, it is quite possible to have positive blood tests and yet never go on to develop full blown scleroderma and vice versa. We do have numerous threads on this very subject. The blood tests are only a small part of the diagnostic process, which is possibly why your doctor was not unduly worried at this stage. A clearer picture may emerge once you've had the further tests initiated by your rheumatologist.

 

We do recommend that our members consult a listed scleroderma expert; unfortunately this will probably mean that you will have to travel out of state to find a suitable specialist, as they are rather thin on the ground in some states.

 

We do have extensive medical pages, describing all the aspects of scleroderma, which I hope you'll find informative and helpful.

 

Kind regards, 

 

 


Jo Frowde

ISN Assistant Webmaster

SD World Webmaster

ISN Sclero Forums Manager

ISN News Manager

ISN Hotline Support Specialist

International Scleroderma Network (ISN)

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Hi Jeannie,

 

I just want to welcome you to Sclero Forums. Hopefully you can consult a listed scleroderma expert. I know that's not easy, especially when it requires an out of state consult. 

 

Sometimes doctors seem to bend over backwards to not appear concerned, lest we catch their anxiety. I actually feel more comforted when they allow themselves to show a bit of kindness and compassion. It's like then, I can let them worry about it, so that I don't have to!

 

Give your doctor the benefit of the doubt. They are likely more concerned than they are letting on. And see if you can get an expert on your medical team, too. 

:hug-group:

 


Warm Hugs,

 

Shelley Ensz

Founder and President

International Scleroderma Network (ISN)

Hotline and Donations: 1-800-564-7099

 

The most important thing in the world to know about scleroderma is sclero.org.

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